dementia

New Insights into Normal Pressure Hydrocephalus

A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.

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The Mighty

We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.

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NPH

Like Father, Like Son: An NPH Journey

One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.

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Adults living with hydrocephalus

Double Your Impact for Adult Hydrocephalus Research!

Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!

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Hydrocephalus Community Network

2016 Member Impact Report

I hope you take great pride in all that we continue to accomplish with your support.

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Hydrocephalus Action Network

Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus

The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.

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Adult with Hydrocephalus

The Power of Sharing

I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information…

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Coping with Normal Pressure Hydrocephalus

Ontario man shares his journey with Normal Pressure Hydrocephalus and the support he received to cope with the diagnosis.

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water on the brain is normal pressure hydrocephalus

The Difficulties of Diagnosing Normal Pressure Hydrocephalus

Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?

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Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition

The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH), taking bold steps forward to raise awareness and knowledge about NPH to the medical professionals serving as the first line of defense for early and proper diagnosis.

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Normal Pressure Hydrocephalus Chicago Med

Chicago Med Raises Awareness of Treatable Dementia

On November 24, 2015, NBC’s Chicago Med aired an episode which highlighted Normal Pressure Hydrocephalus (NPH), often referred to as a treatable dementia.

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Hydrocephalus Action Network

It’s Time to Start Taking Action!

It’s time to start energizing our hydrocephalus grassroots network! Here are a few assignments for you to help make you a star advocate.

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Hydrocephalus Infographic

Hydrocephalus Awareness Infographic

Raise hydrocephalus awareness by sharing this infographic!

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water on the brain is normal pressure hydrocephalus

The Miami Herald Raises Awareness of Normal Pressure Hydrocephalus

When our traditional notions of aging can cloud our ability to ask questions early and often for our loved ones…

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Greys Anatomy features Normal Pressure Hydrocephalus

Grey’s Anatomy Highlights Misdiagnosis of Normal Pressure Hydrocephalus

On Thursday, March 19, 2015, Grey’s Anatomy aired an episode which highlighted Normal Pressure Hydrocephalus and raised awareness of a “treatable dementia.”

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US News and World Report NPH Article

U.S. News & World Report Features Normal Pressure Hydrocephalus

Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.

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FoxNews Is it dementia?

FOX News Educates the Public on Normal Pressure Hydrocephalus

With it’s recent story on Normal Pressure Hydrocephalus, Fox News plays an important role in our continued efforts to educate the public and raise awareness about hydrocephalus and normal pressure hydrocephalus to a large national audience.

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Study States Concussions Lead to Increased Risk of Dementia in Adults

A new study has found that there is an increased risk of dementia in adults 55 years old and over.

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TBI associated with higher risk of dementia in adults 55 and older

Traumatic brain injuries appear to be positively correlated with a higher risk of dementia in older adults, a new study says.

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Adults living with hydrocephalus

Building Community: A case for adult hydrocephalus research

The Adult Hydrocephalus Clinical Research Network officially launched in October, with a goal to deliver high quality, high impact hydrocephalus research.

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Codman Neuro Inaugurates Hydrocephalus Research Prize at ISHCSF

Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.

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Newsday Features Normal Pressure Hydrocephalus

Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.

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New Book on NPH Sights Considerable Savings with Proper Diagnosis

Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.

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water on the brain is normal pressure hydrocephalus

Normal Pressure Hydrocephalus

Normal pressure hydrocephalus (NPH) is an accumulation of cerebrospinal fluid (CSF) that causes the ventricles in the brain to become enlarged, sometimes with little or no increase in intracranial pressure (ICP).

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NPH-type Symptoms Found after Intraventricular Hemorrhage

Researchers presenting at the 2014 International Stroke Conference found patients with intraventricular hemorrhage after intracerebral hemorrhage have an increased risk for developing two of the three classic normal pressure hydrocephalus symptoms.

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AARP Bulletin Features Normal Pressure Hydrocephalus

The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.

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Bringing Normal Pressure Hydrocephalus Out of Obscurity

In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?

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50th Anniversary of the Recognition of Normal Pressure Hydrocephalus

March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.

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Musician Dick Wagner Shares the Long Road to Diagnosis of Normal Pressure Hydrocephalus

Fox 10 News Phoenix airs a powerful interview with famous rock musician Dick Wagner about his long road to receiving the proper diagnosis of Normal Pressure Hydrocephalus.

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Medical Advisory Board Member on Research Team to Investigate Long-Term Outcomes of TBI

Dr. Richard Ellenbogen, a UW neurosurgeon and a member of the Hydrocephalus Association Medical Advisory Board, will serve as a principal investigator on a two-year, $2.4 million study looking into the long-term implications of damage to the brain caused by TBI, funded by Seattle Seahawks owner and Microsoft Co-founder, Paul Allen.

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What if it isn’t Alzheimer’s or Parkinson’s? Understanding Normal Pressure Hydrocephalus

The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.

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Alzheimer’s Weekly Features Normal Pressure Hydrocephalus

Alzheimer’s & Dementia Weekly features a news piece by Dr. Holly Phillips of CBS 2 New York on Normal Pressure Hydrocephalus and how it is often misdiagnosed as Alzheimer’s.

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Adult Hydrocephalus and the Development of a Research Network

Adult Hydrocephalus and the Development of a Research Network

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Finding Treatment for Normal Pressure Hydrocephalus

The Barrow Normal Pressure Hydrocephalus Blog from the Barrow Neurological Institute shares the journey of Walter Pries, diagnosed and treated for Normal Pressure Hydrocephalus.

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Mississippi Woman Misdiagnosed with Alzheimer’s

Phoenix-based CBS Channel 5 shares the story of Fran Rutledge, who was originally diagnosed with Alzheimer’s but, after a fall that broke her back, it was discovered she had Normal Pressure Hydrocephalus (NPH).

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NEW Hydrocephalus Educational Webinar Launch

The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!

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NPH Featured on Boston National Public Radio Show

National Public Radio Boston affiliate WBUR’s Here and Now host, Robin Young, interviews Dr. Mark Johnson, neurosurgeon and head of the Adult Hydrocephalus Program at Brigham and Women’s Hospital, about Normal Pressure Hydrocephalus (NPH).

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Research UPDATE: Improving Diagnosis of NPH Through Imaging

Continuing with our Mentored Young Investigator (MYI) blog series, we want to highlight one of the 2009 recipients, Dana Moore, Ph.D. Her study entitled, “Quantitative measurement of ventricular volume and cortical atrophy to improve diagnosis of Normal Pressure Hydrocephalus (NPH),” aimed to improve diagnosis of NPH through imaging. NPH is a chronic neurological disorder in adults. […]

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Dr. Adam Mednick Interviewed About NPH on Connecticut Morning News Program

Dr. Adam Mednick is interviewed by WTIC Fox Connecticut about the diagnosis and treatment of Normal Pressure Hydrocephalus.

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Normal Pressure Hydrocephalus Featured in The Saturday Evening Post

An article in The Saturday Evening Post plays an important role in educating the public and raising awareness about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH, often referred to as the reversible form of dementia.

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