Posts Tagged ‘congenital hydrocephalus’
Moms on a MISSION: Susan Fiorella, Advocate
Mom #2 – Susan Fiorella, The Advocate. Join us as we profile 7 (S)HEroes of our #hydrocephalus community – MOMS ON A MISSION! Happy Mother’s Day!
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Moms on a MISSION: Vicki Brown, Visionary
One week of celebrating our MOMS ON A MISSION! Mom #1 – Vicki Brown, The Visionary. Happy Mother’s Day!
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HCRN-HA Partnership Results in $1.8 Million Hydrocephalus Research Grant
PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.
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Bachelorette Contestant Wins our Hearts in Hershey
The Hydrocephalus Association would like to thank Brian Osborne, a season 10 Bachelorette contestant, for supporting our Hydrocephalus Association Hershey, PA WALK.
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Solving for X
Ariel Yong, guest blogger for the Hydrocephalus Association Teens Take Charge program, shares her journey with math and her ultimate accomplishment of graduating from college with a degree in mathematics.
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One Person CAN Change the World
In Megan Redfearn’s installment of her blog series, Emma Lee and Me, Megan talks about the strength of her daughter and the impact it has had on her and…well…the world!
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Never Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
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Hydro Queen
Karly Rodriguez wrote this powerful and honest poem one month prior to her ETV procedure, after being diagnosed with hydrocephalus in 2012.
Read MoreLooking Back…Moving Forward: Facing the Future with Fierce Determination and Optimism
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, Elijah Lawrence shares his college essay, a reflection the values and gifts he lives every day of his life.
Read MoreLooking Back…Moving Forward: A Trusted Source for Information
As the Hydrocephalus Association continues its interview series commemorating our 30th anniversary, Tammy Knight shares the value of support and trusted information for parents and individuals.
Read MoreLooking Back…Moving Forward: Advancing the Research Mission
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, David Browdy, Board Member and Chair of the Research Committee, reminisces about the history of the association and shares a vision for the future.
Read MoreLooking Back…Moving Forward: Telling Her Own Story
The Hydrocephalus Association continues its 30th anniversary interview series with Olivia Maccoux, a high school senior, who feels she has been given the opportunity to grow and help others struggling with the challenges of hydrocephalus.
Read MoreHA Established Investigator Publishes Research Findings on Congenital Hydrocephalus
James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.
Read MoreLooking Back…Moving Forward: Adding a Touch of Pixie Dust
Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.
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