chronic medical condition
Elizabeth, a Teens Take Charge guest blogger, shares how making a video about her journey with hydrocephalus has impacted her life and helped others.
Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.
Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.
Hydrocephalus Advocacy Training Webinar! You’ll learn the four keys to effective advocacy, as well as what you can do at home to make a difference.
Preparing for Transition to Adulthood with Baby Steps (that become huge milestones)! It Starts with YOU.
Preparing children to become adult medical patients can happen earlier than you might think, as Cristin Lind shares in her recent article.
With advances in diagnosis and treatment since the 1950s, the majority of individuals with hydrocephalus are transitioning into adulthood. This transition comes with significant challenges that a recent article in the Wall Street Journal highlights.
Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog, “Brushes with Mortality: 5 Lessons On Dealing with Hard Times.” Be inspired.