chronic medical condition

How Hydrocephalus has Impacted My Life: One Teen’s Story

Elizabeth, a Teens Take Charge guest blogger, shares how making a video about her journey with hydrocephalus has impacted her life and helped others.

CONTINUE READING
Dan Kricke, living with hydrocephalus

Aging Out of Pediatric Care: A Cautionary Tale

Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.

CONTINUE READING

Student Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness

Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.

CONTINUE READING

Trouble with School Absences?

Different states have different laws on truancy. Have you experienced issues or challenges with your child missing too much school?

CONTINUE READING

Smart Girls Making College Dreams A Reality

Fiona Wilcox, chair of the TTC Advisory Council, speaks at The College Board forum on attending college with a chronic medical condition.

CONTINUE READING

Elementary School Unites Around One of its Own

Pontiac Elementary School in South Carolina unites around one of it’s own students living with #hydrocephalus to help raise awareness.

CONTINUE READING
Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety & Hydrocephalus, Part 2

As a college student with anxiety and hydrocephalus, how do I cope with it all? That’s a bit of a tough question to answer, as no one has the same methods.

CONTINUE READING
Hydrocephalus Action Network

4 Keys to Being an Effective Hydrocephalus Advocate!

Hydrocephalus Advocacy Training Webinar! You’ll learn the four keys to effective advocacy, as well as what you can do at home to make a difference.

CONTINUE READING
14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

CONTINUE READING
Dan Kricke, living with hydrocephalus

Navigating Social Interactions Growing Up with Hydrocephalus

In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.

CONTINUE READING
Dan Kricke, living with hydrocephalus

Realizing I Had Hydrocephalus

Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.

CONTINUE READING
Kids becoming medical advocates

Preparing for Transition to Adulthood with Baby Steps (that become huge milestones)! It Starts with YOU.

Preparing children to become adult medical patients can happen earlier than you might think, as Cristin Lind shares in her recent article.

CONTINUE READING

Wall Street Journal Addresses the Difficulties of Transitioning to Adult Care

With advances in diagnosis and treatment since the 1950s, the majority of individuals with hydrocephalus are transitioning into adulthood. This transition comes with significant challenges that a recent article in the Wall Street Journal highlights.

CONTINUE READING

Brushes with Mortality: 5 Lessons On Dealing with Hard Times

Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog, “Brushes with Mortality: 5 Lessons On Dealing with Hard Times.” Be inspired.

CONTINUE READING
Change this in Theme Options
Change this in Theme Options