Posts Tagged ‘brain shunt’
Research 101: Generalizability
The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.
Read MoreThe Day-to-Day of Headaches and Hydrocephalus
Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.
Read MoreIs an ETV an Option After Shunt Failure?
Is an ETV an option after shunt failure? A recent review of 15 studies reported on the effectiveness of endoscopic third ventriculostomy (ETV) after shunt failure in children. Dr. Jenna Koschnitzky, National Director of Research Programs, summarizes the findings.
Read MoreObamacare Remains the Law of the Land
After much debate and negotiations, the American Health Care Act was pulled from the House floor before a vote and the Affordable Care Act remained in place.
Read MoreEver Wanted to Push Yourself to RUN?
Ever aspired to run a half or full marathon? Ever thought of running in honor of your loved one living with hydrocephalus? Do you have hydrocephalus and love to run?
Read MoreHow Hydrocephalus has Impacted My Life: One Teen’s Story
Elizabeth, a Teens Take Charge guest blogger, shares how making a video about her journey with hydrocephalus has impacted her life and helped others.
Read MoreMedtronic Addresses FDA Recall for Strata™ II/Strata™ NSC and StrataMR™ valves
The FDA notification regarding Medtronic Strata shunts have led to a number of questions from patients. Here’s what you need to know.
Read MoreAging Out of Pediatric Care: A Cautionary Tale
Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.
Read MoreGenetic Mutations and their Role in Congenital Hydrocephalus
Hydrocephalus has been shown to have multiple causes, including numerous genetic origins. Dr. Jenna Koschnitzky explores genetic mutations in a three blog series.
Read MoreHydrocephalus Shunt featured on Nike’s Air Max Zero
A hydrocephalus patient of Doernbecher Children’s Hospital designs a hydrocephalus shoe in the annual Doernbecher Freestyle event with Nike.
Read More2016 Year-In-Review
As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.
Read MoreWe’re Partnering With The Mighty!
We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.
Read MoreLike Father, Like Son: An NPH Journey
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
Read MoreWhat Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
Read MoreLiving Hydro: One Family’s Journey
Our Charlotte Hydrocephalus WALK Chair shares her daughter’s journey with hydrocephalus.
Read MoreTeam Hydro’s Commitment to Curing Hydrocephalus Receives National Attention
Featured in Forbes, Team Hydro, now in it’s ninth year, has raised $546,335 for hydrocephalus research.
Read MoreHappy 10th Anniversary to the Hydrocephalus Clinical Research Network!
The Hydrocephalus Clinical Research Network celebrates 10 years of pursuing impactful research into childhood hydrocephalus.
Read MoreHydrocephalus Mom Fights to Change Pennsylvania Truancy Law
The Mantheiy family is fighting to change truancy law in Pennsylvania for chronically ill children, like their son who has hydrocephalus.
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