brain bleed

A Writer’s World

Blair Patrick Schuyler talks about the challenges and elation of writing his first book, “Adolescence Interrupted”, and on growing up with hydrocephalus..

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Department of Defense Funds Two Research Studies on Hydrocephalus

Department of Defense funding of two hydrocephalus researchers reflects the success of the Hydrocephalus Association’s Research and Advocacy Initiatives.

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The Vision to End a Condition that is the Leading Cause of Brain Surgery in Children

The Hydrocephalus Association’s annual Vision Dinner highlights the advances in research that aims to prevent or minimize the development of hydrocephalus after a brain bleed.

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New Study Seeks to Improve Outcomes After a Brain Bleed

Germinal matrix hemorrhage (GMH) is a brain bleed that occurs in approximately 3.5 per 1000 live births and remains a leading cause of mortality and lifelong morbidity in premature infants.

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So Many Reasons To Be Grateful

Olivia Maccoux shares her story and leads this year’s holiday drive to support the critical research work of the Hydrocephalus Association.

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Seattle Neurologist Honored for 18 Years of Service to Patients with Debilitating Brain Condition

Dr. Michael A. Williams received the Leadership Award by the Hydrocephalus Association to honor his career dedicated to caring for patients with hydrocephalus.

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Families Unite with Scientists to Prevent Leading Cause of Brain Surgery in Children

The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research initiative that aims to prevent or minimize the development of hydrocephalus after a brain bleed.

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Chicago WALK Chair featured on MIX Matters

Chicago radio station 101.9FM The Mix featured Katie Cook, our Chicago Hydrocephalus Association WALK Chair, on their weekly radio show “MIX Matters” with Susan Wiencek.

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Premature Baby Posthemorragic hydrocephalus

HA Convenes the First International Workshop on Posthemorrhagic Hydrocephalus

Workshop on Posthemorrhagic Hydrocephalus (PHH) proves the potential for researchers to alter the course of the development of hydrocephalus and its long-term outcomes.

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Gift of Life Hydrocephalus Research Campaign

The Gift of Life: 2015 Year End Research Campaign

Finding a cure for hydrocephalus will take our commitment, determination, and perseverance—the very things we demand of hydrocephalus patients every single day.

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Hydrocephalus Vision Dinner Craig and Vicki Brown

Vision Dinner Aims to Accelerate Hydrocephalus Research

The Third Annual Vision Dinner successfully raised $500K to launch the Hydrocephalus Association Network for Discovery Science (HANDS).

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Shunt to treat hydrocephalus on glass model skull

Predicting the Need for a Shunt after a Brain Bleed

Diagnosing the need for a shunt early after someone has had a brain bleed could prevent additional neurological deterioration, study finds.

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Hope in Progress

We have made great strides in hydrocephalus research, from understanding the basic causes, to exploring alternative treatments, to reducing shunt infections. There is hope.

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Multi-center Study Focuses On Drug Therapy to Stabilize Bleeding after TBI

A multi-center national clinical trial will focus on determining if a new intravenous drug therapy can improve outcomes for patients who have life-threatening or life-altering traumatic brain injury (TBI).

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Hand-held Scanner Detects Brain Bleed In Minutes

The InfraScanner (TM) from MedLogic uses near-infrared (NIR) technology to detect a brain bleed after an injury so that medical professionals can make immediate decisions for a patient. The technology has been in use on the battlefield since 2008, but is now available to athletic programs for use at sporting events.

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Children and Adults Facing the Challenges of Hydrocephalus

Eboni Graham with The Amarillo Globe News reports on the challenges both children and adults face living with hydrocephalus. She focuses on Noah Goswick, 3 years old, who acquired hydrocephalus from a brain hemorrhage after a premature birth, and Beverly Cobb, who lives with normal pressure hydrocephalus (NPH).

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Hand Held Scanner to Detect Brain Bleeds

A philanthropic organization based in Virginia Beach named Hillier Ignite has awarded its first Lifesaving Innovation Award to InfraScan Inc.. InfraScan is a medical device company that focuses on developing hand-held diagnostic devices based on near infrared technology for head injury and stroke assessment.

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What is SPML Anyway (and try saying it 3X quickly)?

Lori Poliski shares her family’s experience with SPML, a surgical treatment for children and adults primarily with Spastic Diplegia Cerebral Palsy (SDCP).

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