Posts Tagged ‘Advocacy’
The Hydrocephalus Scoop on Capitol Hill
Believe it or not, the impeachment debate isn’t the only thing happening in Washington, DC! Here’s a quick rundown.
Read MoreCaucus Briefing Educates Members of Congress About Hydrocephalus
Over 60 people attended the Hydrocephalus Caucus Briefing on 10/17. The briefing, hosted by the Hydrocephalus Association and PHF, explored how hydrocephalus impacts patients & how Congress can help.
Read MoreThe Hydrocephalus Scoop on Capitol Hill
Hydrocephalus-related policy issues have been on the move in Congress. We thought we’d give you a quick rundown on what’s going on and how it impacts our community.
Read MoreHow a Changed Congress Could Impact Hydrocephalus
On Tuesday, November 6th, voters went to the polls and made some significant changes to the U.S. Congress. Due to the bi-partisan nature of policy issues impacting the hydrocephalus community, this outcome represents both opportunities and challenges moving forward.
Read MoreOur Advocacy Efforts on Capitol Hill Worked!
The budget bill recently signed by President Trumps protects and increases funding for several crucial hydrocephalus-related research programs.
Read MoreTracking the FY 2019 Spending Bills in Congress
The Hydrocephalus Association joined 35 other patient groups in asking Congress to protect funding for hydrocephalus-related research programs at the Department of Defense (DoD) — and it worked!
Read MoreCongress Preserves Program Essential to Quality Hydrocephalus Research
Thanks to the efforts of a range of advocates, including the hydrocephalus community, Congress has preserved the Congressionally Directed Medical Research Program (CDMRP).
Read MoreThe Power of Storytelling
Storytelling can be a powerful and influential advocacy tool in getting people to understand the breadth and depth of impact hydrocephalus has on individuals and families.Every person afflicted with Hydrocephalus has a story to tell.
Read MoreThe Challenges of Transitioning to Adult Care
HA has long been aware of inequality in care for children and adults with hydrocephalus, and we are taking steps to bridge the gap.
Read MoreVoices from Our Community: Milton Newman Shares His Story of NPH
Fog is Lifted After 15 Years of Confusion and Misdiagnosis Milt Newman’s retirement was not…
Read MoreCongress Discusses Hydrocephalus and our Military
by Paul Gross, HA Chairman of the Board of Directors Yesterday, hydrocephalus was a hot…
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