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New Ask the Expert Video Series for Adults Living with Hydrocephalus

January 2, 2020

Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.

Finding Life’s Purpose Through Hydrocephalus

May 31, 2019

James “JT” Thompson developed hydrocephalus as a teen. Little did he know that his experience would help him find his purpose in life.

Aging Out of Pediatric Care: A Cautionary Tale

February 1, 2017

Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.

Like Father, Like Son: An NPH Journey

November 23, 2016

One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.

Why I WALK – For a Better Tomorrow

June 27, 2016

The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.

Inspiring 26 Miles: A Posse of Penguins Take On the LA Marathon

March 8, 2016

Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.

Realizing I Had Hydrocephalus

May 26, 2015

Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.

Learning to Date Me

May 6, 2015

Bryant, our new guest blogger, shares openly about the unconditional support of his fiancee and resilience of their relationship as he lives with hydrocephalus.

Telling My Story

April 28, 2015

Meet Dan, a new guest blogger lending his voice to our adult hydrocephalus community. We are excited for Dan to share different aspects of his journey each month.