acquired hydrocephalus

Hydrocephalus Teens Take Charge Scholarships

Announcing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Adults living with hydrocephalus

Double Your Impact for Adult Hydrocephalus Research!

Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!

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Susan Fiorella, hydrocephalus advocate, with her son.

Together Towards Tomorrow

If we don’t act with a collective sense of urgency, nobody else will. It’s been more than 50 years since a significant improvement has occurred in the treatment of hydrocephalus.

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National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

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National Hydrocephalus Conference

Countdown to Conference: Tips on making it affordable!

The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.

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14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

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Hydrocephalus Teens Take Charge Scholarships

Announcing 2015 TTC Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Dr. Mark Hamilton, Adult Hydrocephalus Clinical Research Network

Upcoming Webinar: AHCRN Update

Join us for our next webinar on the Adult Hydrocephalus Clinical Research Network (AHCRN). Tune in to hear about progress after 1 year of patient enrollment.

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Hydrocephalus Patient Conference

MINNEAPOLIS: We are on our way! 2016 Hydrocephalus Conference

SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

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Dr. Andrew Zabel Tackles Anxiety and Hydrocephalus

Dr. Andrew Zabel, Ph.D., ABPP, Kennedy Krieger Institute, returns to the Hydrocephalus Association’s 13th National Conference on Hydrocephalus to lead two sessions – the ABCs of IEPs and Anxiety, Depression and Hydrocephalus. Join us in Portland, OR, July 9-11.

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Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

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Toddler’s First Hearing Experience Goes Viral on Social Media

Dylan, who was born 11 weeks prematurely, acquired hydrocephalus from a brain infection that resulted in 15 brain surgeries and 101 days battling to recover in the NICU. In a video that has gone viral on social media, Dylan receives hearing aids and is able to hear sound for the first time. Laugh with joy with Dylan!

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An ETV Gives Young Adult New Lease on Life

Meredith Vitrano acquired hydrocephalus as a pre-teen. The now 24 year-old has been shunt free for 2 years after Dr. Edward Ahn of Johns Hopkins Children’s Center performed an endoscopic third ventriculostomy.

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Iowa Kindergarten Class Learns About Hydrocephalus

The Audubon County Advocate Journal reports on Daytona Burr who, with the help of her mother and Boozle the Bear, helped educate her kindergarten class on hydrocephalus. Daytona has had hydrocephalus since birth.

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UMD Football Coach and High School Player Have Lasting Friendship

The Washington Post shares a lasting friendship between the University of Maryland head football coach, Randy Edsall, and Jeff Place, a Connecticut high school student diagnosed with hydrocephalus as the result of a brain tumor.

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Results of our Facebook post: “What caused your hydrocephalus?”

By Karima Roumila, MPH, Community Programs Director After posing this question to our Facebook members we received many comments from our community about the causes of their hydrocephalus as well as their age of diagnosis.  61% of the respondents said they or their loved one were born with hydrocephalus, meaning they have congenital hydrocephalus, while, […]

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