BrainScope Company, Inc. Awarded Grant to Study TBI
BrainScope Company, Inc, a Bethesda, MD based company has been granted research funds to investigate TBI by the Pentagon. The hope is that they will be able to create innovative new technologies and treatments for rapid response in cases of TBI and TBI related injuries including hydrocephalus.
Read the full story by clicking here.
Chicago WALK Appears in Chicago Sun-Times
The recent Chicago, IL WALK was featured in a recent online edition of the world famous Chicago Sun-Times.
Chattanooga, TN WALK Featured in Local timesfreepress.com
The timesfreepress.com, a local news outlet features the story of Chara McLaughlin and Emma, her three year old daughter living with hydrocephalus and how they hope to make a differenc in the upcoming Chatanooga, TN WALK on October 27th.
Starexponent.com Announces National Hydrocephalus Awareness Month
Mandy Houston writes an article explaining National Hydrocephalus Awareness Month.
Click here to read the full article.
The Dekalb Times-Journal Shares Story of a Local Family Dealing with Hydrocephalus who are in Need
The Dekalb T/J tells the story of the Garrett family who’s newborn daughter was diagnosed with both hydrocephalus and hydroencephaly. They are struggling to make ends meet so friends, family and community are coming together to help them meet the demands of medical costs in a fundraiser.
To read the full story, click here.
45 Year Old Cancer Survivor with Spina Bifida Jumps for Charity
thisiskent.com, a UK based online news source featured the story of Jon Clark, a 45 year old cancer survivor with Spina Bifida who doesn’t let these conditions get in the way of his life.
Rhode Island’s Congressional Delegates Join the Pediatric & Adult Hydrocephalus Caucus
The Pediatric Hydrocephalus Foundation (PHF) announced on their website that two new members from Rhode Island have joined the Hydrocephalus Caucus.
Iowa City Girl Featured in hawkeyesports.com
In 2001, at 20 months old, Skylar Jacobson was diagnosed with a brain tumor and resulting hydrocephalus. Skylar will be honored as the Iowa Children’s Hospital’s “Kid Captain” this Saturday and her story appears in hawkeysports.com.
Click here to read the full story.
9/15 – Richmond, Virginia Hydrocephalus Support Group Meeting
~Partners Network ~
Hydrocephalus Support Group Meeting
Virginia
TOPIC: Overview of 12th HA Conference
When:
Saturday, September 15, 2012
2:30pm to 4:00pm
Where:
Rappahannock Regional Library
England Run branch
806 Lyons Blvd
Fredericksburg, VA 22406
Please R.S.V.P. to Annie Mason by Wednesday March 21, 2012
(540) 898-4568 or Richmondsupport@hydroassoc.biz
Find our group on Facebook under Richmond Hydrocephalus Association Support Group
(closed group; posts for members only)
Raising Awareness…From Coast to Coast!
Strength. Perseverance. Endurance. Spirit. Do these traits sound familiar?
Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged themselves to ride 2,500 miles across the country to raise awareness about hydrocephalus and to help raise funds for the Hydrocephalus Association (HA). Their ‘Spirit of America Ride for Hydrocephalus‘ is also their way of paying tribute to Mary’s niece, Madeleine Daraowiche, and the courage she’s shown having undergone seven brain surgeries for her hydrocephalus. Read more
