BrainScope Company, Inc, a Bethesda, MD based company has been granted research funds to investigate TBI by the Pentagon. The hope is that they will be able to create innovative new technologies and treatments for rapid response in cases of TBI and TBI related injuries including hydrocephalus.
The recent Chicago, IL WALK was featured in a recent online edition of the world famous Chicago Sun-Times.
The timesfreepress.com, a local news outlet features the story of Chara McLaughlin and Emma, her three year old daughter living with hydrocephalus and how they hope to make a differenc in the upcoming Chatanooga, TN WALK on October 27th.
Mandy Houston writes an article explaining National Hydrocephalus Awareness Month.
The Dekalb T/J tells the story of the Garrett family who’s newborn daughter was diagnosed with both hydrocephalus and hydroencephaly. They are struggling to make ends meet so friends, family and community are coming together to help them meet the demands of medical costs in a fundraiser.
thisiskent.com, a UK based online news source featured the story of Jon Clark, a 45 year old cancer survivor with Spina Bifida who doesn’t let these conditions get in the way of his life.
The Pediatric Hydrocephalus Foundation (PHF) announced on their website that two new members from Rhode Island have joined the Hydrocephalus Caucus.
In 2001, at 20 months old, Skylar Jacobson was diagnosed with a brain tumor and resulting hydrocephalus. Skylar will be honored as the Iowa Children’s Hospital’s “Kid Captain” this Saturday and her story appears in hawkeysports.com.
~Partners Network ~
Hydrocephalus Support Group Meeting
TOPIC: Overview of 12th HA Conference
Saturday, September 15, 2012
2:30pm to 4:00pm
Rappahannock Regional Library
England Run branch
806 Lyons Blvd
Fredericksburg, VA 22406
Please R.S.V.P. to Annie Mason by Wednesday March 21, 2012
(540) 898-4568 or Richmondsupport@hydroassoc.biz
Find our group on Facebook under Richmond Hydrocephalus Association Support Group
(closed group; posts for members only)
Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged themselves to ride 2,500 miles across the country to raise awareness about hydrocephalus and to help raise funds for the Hydrocephalus Association (HA). Their ‘Spirit of America Ride for Hydrocephalus‘ is also their way of paying tribute to Mary’s niece, Madeleine Daraowiche, and the courage she’s shown having undergone seven brain surgeries for her hydrocephalus. Read more