Other Useful Resources

Medical Centers & Doctors

Beth Israel Medical Center The INN’s official site provides general information about pediatric and adult neurosurgery, along with specific informantion on hydrocephalus and associated disorders.

The Adult Hydrocephalus Center at Sinai Hospital of Baltimore, part of The Sandra and Malcolm Berman Brain & Spine Institute, provides internationally recognized expertise in the diagnosis, treatment, and longitudinal care of adults with hydrocephalus, including pediatric hydrocephalus patients transitioning into adulthood. The team of experts, led by Michael A. Williams, MD, is actively involved in research, patient/family education, and patient advocacy efforts.

John Hopkins Hydrocephalus and IIH Center This site provides information about NPH and IIH as well as a description of the multi-disciplinary center and how to make an appointment.

Mayo Clinic Department of Neurosurgery This site features an overview of the clinic’s services, a list of doctors, an online appointment booking services, and more.

UCLA Neurosurgery: Adult Hydrocephalus Program This site gives an excellent explanation of normal pressure hydrocephalus, its causes and its treatment. It also describes UCLA’s Adult Hydrocephalus Program, directed by Marvin Bergsneider, M.D.


General Resources

Dandy-Walker Alliance This alliance is an all-inclusive organization including people directly and indirectly affected by Dandy-Walker who share an interest in educational, informational activities and supporting nonpartisan research to increase public awareness Dandy-Walker syndrome.

FollowMe This site is a one-stop shop designed to help with web-based management of medical records. FollowMe is secure and user-friendly.

International Federation for Spina Bifida and Hydrocephalus The International Federation for Hydrocephalus and Spina Bifida (IF) is the worldwide umbrella organization (NGO) for hydrocephalus and spina bifida. It was established in 1979. Today the IF’s membership includes national umbrella organizations for hydrocephalus and spina bifida in over 40 countries.

National Institutes of Health Hydrocephalus Links This list of hydrocephalus links is put together by the National Institutes of Health, in conjunction with Medline.

Neurosurgery://On-Call: Hydrocephalus FAQ This provides a list of frequently asked questions about hydrocephalus (and their answers), from the official site of the American Association of Neurological Surgeons and Congress of Neurological Surgeons.

Spina Bifida Association This site covers everything from vital information about the B-vitamin folic acid for women affected by a neural tube defect to information who might become pregnant, to strategies to help improve the quality of life for people living with spina bifida.

DrugWatch.com DrugWatch’s site features a comprehensive list of drugs and medications that are currently on the market, or were previously available worldwide.

Normal Pressure Hydrocephalus From Diagnosis to Treatment, Adam S. Mednick, M.D., Ph.D. In his new book, Dr. Adam Mednick, neurologist, draws from twenty years experience to provide concise information to help individuals understand how NPH is diagnosed and treated.

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