A main goal of the Hydrocephalus Association is improving the quality of life for people living with hydrocephalus through research and advocacy. We lead and empower our community to advocate for more federal support of hydrocephalus research and encourage interest and collaboration in the private research community. We also work closely with other national organizations with similar goals to improve health policy for all people, especially those with chronic medical conditions like hydrocephalus.
Please browse through our Advocacy pages to become familiar with current research initiatives, search medical journal articles, strengthen our database registry by adding your personal data, and learn about our hydrocephalus research advocacy initiative and health policy objectives.
Join our list of Active Advocates and receive Association advocacy alerts on pending legislation and health policy issues via email.
Please read our case statement about the need for more research.