Hydrocephalus Education Days Provide Connections

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Hydrocephalus Association Education Days

Hydrocephalus Education Day in New York City

Complementing our National Conference on Hydrocephalus, the Hydrocephalus Association (HA) is proud to host Hydrocephalus Education Days in select cities across the USA for individuals living with hydrocephalus and their caregivers. In partnership with the expertise of national and regionally located medical professionals and institutions, these free, one-day events are designed to deliver education, support and networking opportunities for the hydrocephalus community.

On Saturday, October 1st at Montefiore Medical Center, eight clinical experts from four of New York’s leading medical centers collaborated to host the Greater New York Hydrocephalus Education Day and on Saturday, October 8, 2016, HA, in partnership with Barrow Neurological Institute at Phoenix Children’s Hospital, co-hosted a free, half day Hydrocephalus Education Day for the local community.

During Education Days, medical professionals answer questions and address specific concerns to the entire community. In addition, participants have an opportunity to meet other patients and caregivers and gain valuable tips, tools, and knowledge from their personal experience.

At the Greater New York Hydrocephalus Education Day, a mother attending with her two daughters became sorely distraught as her daughter experienced a debilitating headache due to hydrocephalus complications. The mother expressed her frustration with the number of brain surgeries her daughter has had to endure. Mia Padron, mother to a son with hydrocephalus, shared her personal experiences and recommended a remedy for the young girl. She explained that lying down often helps her son when he is over draining. Much to our relief the young girl felt better after a short rest in the car. The family left feeling more hopeful.

Participants at both Education Days raved about the breakout sessions, individual Q&A time with doctors, the intergenerational panel and the opportunity to connect with peers in a similar situation. In addition, a participant stated, “The event was thorough and on point.  Speakers went to great lengths to present in lay terms.  Overall, it was useful, informative, comforting, and detailed…  Looking forward to the next one and beyond!”

We’d like to extend our appreciation to the following speakers:

Rick Abbott, MD

Clinical Professor, Departments of Neurological Surgery and Pediatrics
Montefiore Medical Center, Albert Einstein College of Medicine
Member, Hydrocephalus Association Medical Advisory Board

Richard C.E. Anderson, MD, FACS, FAAP

Associate Professor of Neurological Surgery
New York-Presbyterian, Columbia University Medical Center

Taryn Bragg, MD

Neurosurgeon, Barrow Neurological Institute at Phoenix Children’s Hospital

Laura Freeman, PhD

Neuropsychologist, Barrow Neurological Institute at Phoenix Children’s Hospital

Saadi Ghatan, MD

Associate Professor of Neurosurgery
Mount Sinai Hospital

James T. Goodrich, MD, PhD

Chief, Division of Pediatric Neurosurgery
Clinical Professor, Departments of Neurological Surgery and Pediatrics
Montefiore Medical Center, Albert Einstein College of Medicine

Jeffrey Greenfield, MD, PhD

Associate Professor of Neurological Surgery
Weill Cornell Medical College, Cornell University

David H. Harter, MD

Assistant Professor of Neurosurgery
NYU Langone Medical Center
Member, Hydrocephalus Association Medical Advisory Board

Caitlin E. Hoffman, MD

Assistant Professor of Neurological Surgery
Pediatric Neurosurgery
Weill Cornell Medicine

David Shafron, MD

Neurosurgeon, Barrow Neurological Institute at Phoenix Children’s Hospital

Jeffrey Wisoff, MD

Professor of Neurosurgery and Pediatrics
NYU School of Medicine
Director, Division of Pediatric Neurosurgery
Hassenfeld Children’s Hospital of New York at NYU Langone Medical Center

Consider joining us in 2017! Locations to be announced.

 

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