Community Network

It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education and empowerment through community. Our network hosts educational events, support group meetings and other gatherings that enable individuals and families to connect.

We encourage you to explore the resources available in your area. Be informed and stay connected!

Our Community Network is vital to the continued strength of the Association. If there’s not a Community Network in your area, and you’re interested in learning more please contact Jennifer Johnson at Jennifer@hydroassoc.org.


AL Join our online Community Network

AZ Phoenix  Maggie Bobrowitz NPH only info@hydroassoc.org
Tucson Thomas Tronsdal All Ages AZsupport@hydroassoc.biz
Join our online Community Network

CA  Los Angeles  Amber Milliken  All Ages LAsupport@hydroassoc.biz
Los Angeles Facebook Group
Join our online Community Network

CO Join our online Community Network

CT Hartford Tracy Taback All Ages ctsupport@hydroassoc.biz
(860) 508-6546
Join our online Community Network

DC Washington Join our online Community Network

FL South Roxana Ramos All Ages MiamiSupport@hydroassoc.biz
Central Cheryl Freestone Peds, Adolescent, orlandosupport@hydroassoc.biz
and Adult
Central Jennifer Clements NPH only orlandoNPHsupport@hydroassoc.biz
Tracy Harvil NPH only orlandoNPHsupport@hydroassoc.biz
Join our online Community Network

IL Chicago Katie Cook Peds, Adolescent, chicagosupport@hydroassoc.biz
Young Adult
Chicago Sherry Reising Adult and NPH chicagosupport@hydroassoc.biz
Carmina Salgado
Join our online Community Network

IN Central & Northwest Lindsey White All Ages indianasupport@hydroassoc.biz
Join our online Community Network
Clarksville Thomas Adams All Ages Kentuckysupport@hydroassoc.biz
Join our online Community Network
Serving Clarksville, IN and Louisville, KY

KS Join our online Community Network

KY Louisville Thomas Adams All Ages Kentuckysupport@hydroassoc.biz
Join our online Community Network
Serving Clarksville, IN and Louisville, KY

MA Boston Jennifer Miles All Ages Bostonsupport@hydroassoc.biz
Sue Wiegers
Join our online Community Network

MD Baltimore Carol Wamboldt All Ages baltimoresupport@hydroassoc.biz

MI Join our online Community Network

MN Minneapolis Jennifer Bulthuis Peds/Adolescent minneapolissupport@hydroassoc.biz
(612) 968-0087
Join our online Community Network

MO Join our online Community Network

NC Charlotte Summer Minchew  All Ages charlottesupport@hydroassoc.biz
Join our online Community Network

NJ Morristown Missy Shoemaker All Ages northnjhydrogroup@yahoo.com
(908) 442-5987
Susan Shoemaker All Ages northnjhydrogroup@yahoo.com
(908) 303-0511
NJ Website

NY Buffalo Toddie Rogers All Ages buffalosupport@hydroassoc.biz
Long Island Jackie Davidson All Ages linysupport@hydroassoc.biz
(516) 241-3670
Mia Padron All Ages linysupport@hydroassoc.biz
(631) 255-4756
Andrea Moore All Ages (516) 835-6587
Join our online Community Network

OH Join our online Community Network

OK Owasso Tina Daniels All Ages owassosupport@hydroassoc.biz
Join our online Community Network

OR Portland Jennifer Matheis All Ages PDXvancouversupport@hydroassoc.biz
Serving Portland, OR and Vancouver, WA

PA Pittsburgh Nicky Snyder pittsburghsupport@hydroassoc.biz
Join our online Community Network

RI Providence Jessica Young All Ages RIsupport@hydroassoc.biz
Join our online Community Network

TN Nashville Rachel Koza All Ages nashvillesupport@hydroassoc.biz
Join our online Community Network

TX Dallas Megan Redfearn All Ages dallassupport@hydroassoc.biz
Houston Jamie Wright Pediatric & Adolescent HoustonSupport@hydroassoc.biz
Join our online Community Network

UT Salt Lake City Tammy Knight All Ages slcsupport@hydroassoc.biz

VA Richmond Annie Mason All Ages richmondsupport@hydroassoc.biz
Join our online Community Network

WA Bremerton Rebekah Uhtoff Peds/SB bremertonsupport@hydroassoc.biz
Kitsap Spina Bifida and Hydrocephalus Association Facebook Group
Seattle Haylie McSheridan Peds seattlesupport@hydroassoc.biz
Seattle Support Group Website
Seattle Support Group Facebook Page
Vancouver Jennifer Matheis All Ages PDXvancouversupport@hydroassoc.biz
Serving Portland, OR and Vancouver, WA

NIGERIA Lagos Afolabi Fajemilo Children & Families info@fesfajfoundation.org
FESTUS FAJEMILO FOUNDATION (FFF) Hydrocephalus and Spina Bifida http://fesfajfoundation.org/

 

Share