Community Network

It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education and empowerment through community. Our network hosts educational events, support group meetings and other gatherings that enable individuals and families to connect.

We encourage you to explore the resources available in your area. Be informed and stay connected!

Our Community Network is vital to the continued strength of the Association. If there’s not a Community Network in your area, and you’re interested in learning more please contact Megeen White at [email protected].


State City/Market Category Volunteer Contact Online Community Network

AL Online [email protected] Join our Online Community Network

AR Online Brianne Wesson [email protected] Join our Online Community Network

AZ Phoenix NPH Maggie Bobrowitz [email protected]
Phoenix All Ages Chanda McRoberts  [email protected]
Tucson All Ages Thomas Tronsdal [email protected]
Join our Online Community Network

CA Los Angeles Online [email protected] Join our Online Community Network
Join our Online Community Network

CO Online [email protected] Join our Online Community Network

CT Hartford All Ages Tracy Taback [email protected] Join our Online Community Network

DC Washington All Ages  Amanda Garzon [email protected] Join our Online Community Network

FL Central All Ages Cheryl Freestone [email protected]
Central NPH Only Jennifer Clements- Lipofsky [email protected]
South All Ages Roxana Ramos [email protected]
Join our Online Community Network

IL Chicago Pediatric, Adolescent
and Young Adult
Katie Cook [email protected]
Chicago Adult and NPH Sherry Reising [email protected]
Carmina Salgado [email protected]
Join our Online Community Network

IN Central and
Nortwest
All Ages Lindsey White [email protected]
Clarksville
(Serving the Louisville, KY
and Clarksville, IN area)
All Ages Thomas Adams [email protected]
Heather Adams [email protected]
Join our Online Community Network

KS Online [email protected] Join our Online Community Network

KY Louisville
(Serving the Louisville, KY
and Clarksville, IN area)
All Ages Thomas Adams [email protected]
Heather Adams [email protected]
Join our Online Community Network

MA Boston All Ages Jennifer Miles [email protected]
Sue Wiegers [email protected]
Join our Online Community Network

MD Baltimore All Ages Carol Wamboldt [email protected]

MI Online Jennifer Bechard Johnson [email protected] Join our Online Community Network

MN Minneapolis Pediatric and Adolescent Jennifer Bulthuis [email protected] Join our Online Community Network

MO Online [email protected] Join our Online Community Network

NC Charlotte All Ages Summer Minchew [email protected] Join our Online Community Network

NJ Morristown All Ages Susan Shoemaker [email protected]

NY Central All Ages Toddie Rogers [email protected]
Long Island All Ages Mia Padron [email protected]
Jackie Davidson [email protected]
Andrea Moore [email protected]
Join our Online Community Network

OH Online [email protected] Join our Online Community Network

OK Owasso All Ages Tina Daniels [email protected] Join our Online Community Network

OR Portland
(Serving the Portland, OR and Vancouver, WA area)
All Ages Jennifer Matheis [email protected] Join our Online Community Network

PA Pittsburgh Online [email protected] Join our Online Community Network

RI Providence All Ages Jessica Young [email protected] Join our Online Community

SC Online Hannah Dill [email protected] Join our Online Community Network

TN Nashville All Ages Rachel Koza [email protected] Join our Online Community

TX Dallas All Ages Megan Redfearn [email protected]
Houston Pediatric and Adolescent Jamie Wright [email protected]
Join our Online Community Network

UT Salt Lake City All Ages Tammy Knight [email protected]
SarahAnn Whitbeck [email protected]
Join Our Online Community Network

VA  Richmond All Ages Annie Mason [email protected] Join our Online Community Network

WA Bremerton Pediatric Hydrocephalus
and Spina Bifida
Rebekah Uhtoff [email protected]
Seattle Pediatric Lori Poliski [email protected] Seattle Support Group Website
Seattle Support Group Facebook
Vancouver
Portland
(Serving the Portland, OR
and Vancouver, WA area)
All Ages Jennifer Matheis [email protected] Join our Online Community Network

International

Location Category Volunteer Contact Website
NIGERIA Lagos Children and Families
Hydrocephalus and
Spina Bifida
Afolabi Fajemilo [email protected] Festus Fajemilo Foundation
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