Kashawn Gets a New Room
Kashawn Jackson of Binghamton, NY arrived home from the hospital to find his room done over by “A Room to Heal, Inc“. This story was covered by several local media sources including: WBNG-TV, WICZ, WBGH and the Ithaca Journal.
Kashawn recently shared his story with his peers in our Teens Take Charge blog.
Colorado Mom’s Search for a Special Needs Babysitter Featured in USA Today
Christine Quayle of Colorado was faced with a challenge faced by many parents of children with a chronic condition, how to find a babysitter. Her son, Brian was born with hydrocephalus as well as cerebral palsy and finding help proved a daunting task at first.
Click this link to read the full article.
Tracy Mom Honored by Red Cross
Congratulations to Kim Ruiz of Tracy, CA for being honored with the Red Cross Hero of the Year Award. As the mother of a child with hydrocephalus Kim has dedicated herself to helping our community achieve heightened awareness. As the Red Cross Hero of the Year, Ms. Ruiz is in an unique position to do just that.
To see the article from the local news outlet and read about the award event, please click here.
HCRN Investigator Receives NIH Award
Dr. David Limbrick, an investigator for the Hydrocephalus Children’s Research Network (HCRN) has received an K23 Career Development Award by the National Institute of Neurological Disorders and Stroke (NINDS).
To read more, please click this link.
Huffington Post Again Shines the Light on NPH
Huffington Post columnist Marie Marley shines a further light on Normal Pressure Hydrocephalus (NPH) and tells the stories of Alicia Harper and Jimmy Nowell. Originally misdiagnosed, they were both finally able to receive a successful and accurate diagnosis and find relief from their symptoms by shunt placement.
Click here to read the full article.
New Braunsfels, Texas Woman Featured by Local NBC Affiliate
Sheri Burdine, the founder or Hydroangelsovertexas, is dedicated to spreading the word about hydrocephalus. Due to her tireless efforts on behalf of the hydrocephalus community, she was awarded the Jefferson Award which is given to people who go above and beyond to help others. Her story was featured by a local NBC Affiliate.
Watch the video here:
NPH Featured in the Huffington Post
Columnist Cynthia R. Green, PhD talks about Normal Pressure Hydrocephalus and relates the story of her mother-in-law’s struggle to achieve an accurate diagnosis.
Click here to read the full article.
Louisville, KY Family’s Hydrocephalus Story in the Louisville Special Needs Kids Examiner
Holly and Issac Frasure tell their story of how they learned about their daughter, Evie’s hydrocephalus, and the profound effect it has had on their new family.
Read the full article, “Hydrocephalus and its Effects on a Family.
Two Children with Hydrocephalus Meet their Heroes
Two children with hydrocephalus, Eddie and Hannah, appear in the ‘kidswishnetwork’ blog after meeting their celebrity heroes.
Click here to read both articles.
Miami Magazine Featuring a Fundraiser for Hydrocephalus Association
Miami Magazine, in conjunction with LoveCat, LLC, is sponsoring a ‘Dead Hollywood’ birthday party and fundraiser to raise donations for the Hydrocephalus Association.
