Virginia Boy Granted Wish by the Make-A-Wish Foundation
Progress-index.com reports on ten-year-old Casey Wray of Colonial Heights, VA, who was given an all expense paid trip to to New Jersey to see WWE’s WrestleMania by the Make-A-Wish Foundation. Casey has hydrocephalus and, on the trip with his family, met other families from all over the world, including another little boy from Kansas with hydrocephalus.
Click here to read the full article.
Easter Seals Youth Ambassador Sets Sights on Finding a Cure
The Doings Clarendon Hills newspaper, a publication of the Chicago Sun-Times, reports on 10 year-old Jayne Crouthamel, Easter Seals Youth Ambassador, who captivated audiences at the DuPage and Fox Valley Region annual gala.
Click here to read the article.
Lake Stevens, WA Man Joins Team Hydro for Upcoming Alcatraz Sharkfest Swim
Brian Couch of Lake Stevens, WA, will join Team Hydro for the Alcatraz Sharkfest on May 19th in San Francisco, CA. Team Hydro raises funds for research to find a cure for hydrocephalus. The funds are presented annually to the Hydrocephalus Association. Peter and Sam Finlayson founded Team Hydro after the death of their 26-year-old sister, Kate Finlayson. Kate had more than 100 surgeries before she died in 2010.
Click here to read the full article.
To donate to Team Hydro, go to www.kintera.org/faf/donorReg/donorPledge.asp?ievent=1061674&supId=369342555.
Update on Baby Roona
The British online newspaper, MailOnline, provides an update on Baby Roona with moving pictures and accounts from her parents.
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Olivia Maccoux Dubbed ‘Iron Athlete’ By High School Teammates
The Minneapolis Star Tribune reports on our very own Olivia Maccoux who has shone as a star athlete. Park Center high school classmates have dubbed her the ‘Iron Athlete’ for her incredible athletic performances and perseverance.
Click here to read this inspirational article.
Over 2,500 New Cases of Hydrocephalus Reported in Uganda Each Year
New Vision, a Ugandan newspaper, reports that health estimates show over 2,500 new cases of hydrocephalus are reported each year. Since treatment can be cost prohibitive, Johnson Derek, the Executive Director for CURE hospital in Mbale, states that they have developed a way to assess families ability to pay and are providing children much needed medical help.
Click here to read the full article.
Connection Found Between Congenital Hydrocephalus and a Genetic Defect
Researches from the Texas A&M Institute of Biosciences and Technology have found a connection between hydrocephalus and a genetic defect, a finding that may eventually lead to treatments for this form of hydrocephalus.
Click here to read the press release.
HA Mom Raises Awareness in the Missourian
Robin Friedrich shares her son Clayton’s story of being born with hydrocephalus in the Columbia Missourian From Our Readers series. She has made it her life mission to raise awareness for hydrocephalus. She will participate in the St. Louis WALK this September.
Click here to read the full article.
Establishment of a Hydrocephalus Registry Currently Under Consideration in Australia
The Australian Government Department of Health and Aging has submitted a report currently under review to establish a registry of individuals with hydrocephalus. The registry is part of a larger initiative by the Australian government to improve surveillance of certain high risk implantable medical devices as well as track patient outcomes.
Click here to read the official statement.
Obama Proposes BRAIN Initiative
President Obama proposed $100 million in funding for the Brain Research Through Advancing Innovative Neurotechnologies, or BRAIN, Initiative with the goal of gaining a better understanding of the functioning of the brain to in turn find better treatment options for a range of brain disorders.
Click here to read the full article from CNN.
