A Seat at the Table: NINDS Nonprofit Forum 2013
On September 10 and 11, 2013, the National Institutes of Health (NIH) National Institute of Neurological Disorders and Stroke (NINDS) hosted their annual Nonprofit Forum. This year’s forum, “Progress through Partnership,” emphasized the role nonprofits play in linking scientists at NINDS with the patient community for better research outcomes. Paul Gross, HA board member and member of the NINDS Advisory Council, served on the planning committee that helped build the agenda for the event. Representatives from over 80 nonprofit organizations had the opportunity to listen to and interact with key NINDS officials, including Dr. Story Landis, director of NINDS, and Dr. Kathy Hudson, deputy director for science, outreach and policy at NIH.
“It’s been incredibly valuable to the hydrocephalus community that we have been invited to be on the inside track at NINDS, the largest funder of brain science in the country,” shared Paul. “It was also great being part of this extended team that connected senior leadership in NINDS to important issues in the not-for-profit advocacy organizations.”
This year’s event featured a nonprofit to nonprofit education and collaboration session intended for leaders of patient advocacy organizations that are trying to improve their relationship with NINDS. Paul served as a guest presenter, delivering a presentation entitled, “Creative Advocacy Not Limited by Staff or Budget.” Many of you may have seen our post on Facebook of Paul speaking.