The HA's Mission is to: 'Eliminate the challenges of hydrocephalus'
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The CEO's Corner
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Hydrocephalus Association CEO Dawn Mancuso reflects back on Hydrocephalus Awareness Month and the many accomplishments of our community in raising our voices.
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Support and Education Update
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The current election cycle is an opportunity to follow up on the great work we did in raising awareness during Hydrocephalus Awareness Month. The launch of our Advocacy Toolkit provides information and resources for you to use when interacting with politicians and the media.
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The Hydrocephalus Association proudly announces the launch of our Spanish-language information pages on hydrocephalus. Our launch falls at the midpoint of Hispanic Heritage month (mid-September through mid-October) as well as serves as a celebratory ending to September's Hydrocephalus Awareness month.
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Milt Newman's retirement was not living up to expectations due to a slow progression of seemingly inexplicable mental and physical decline. What no one knew was that Milt, then 73, was suffering from Normal Pressure Hydrocephalus (NPH). Read more
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Madeleine, a junior in high school, was diagnosed with hydrocephalus before she was born. She shares her journey with hydrocephalus over the last 17 years of her life.
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Development Update
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Inaugural Investor Webinar: Delivering on a Promise
The Hydrocephalus Association hosted our inaugural investor webinar, Delivering on a Promise, for financial investors in our Research Initiative campaign. The webinar showcased our current research efforts and provided an update on our transition to Washington, DC. The presentations reviewed several new advances in clinical and basic science discovery as well as a recap of the key outcomes of the 2012 Research Conference on Hydrocephalus. The presenters included Paul H. Gross, chairman of the board of the Hydrocephalus Association, Miles Johnston, PhD, of the University of Toronto, and John R.W. Kestle, MD, of the University of Utah. The webinar was hosted by Dawn Mancuso, CEO of the Hydrocephalus Association.
Read more about our Research Initiatives
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Research Update
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Dr. Benjamin Warf, associate professor of surgery at Harvard Medical School and director of the Neonatal and Congenital Anomaly Neurosurgery Program at Children's Hospital Boston, was named a 2012 MacArthur Foundation Fellow by the John D. and Catherine T. MacArthur Foundation. Dr. Warf is recognized for his outstanding work developing new treatments for hydrocephalus while living in Uganda.
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Advocacy and Awareness Update |
Four years ago, Mia Padron of Long Island, New York, was on a mission to make a difference for the life of her son and all other individuals living with hydrocephalus. She worked with State Senator John Flanagan to have September declared Hydrocephalus Awareness Month for the state of New York. Every year she works with Senator Flanagan to reintroduce the resolution. This year, the Senator invited Mia and her WALK Co-chair and close friend, Jackie Davidson, to accept the resolution in person.
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September is our busiest WALK Month
September saw 14 WALKS take place across the country, spanning from California to New York. An estimated 5,000 individuals participated throughout the month. We raised approximately $350,000 from 328 teams. Thank you to the amazing volunteers who have given their time to make these events possible. But we still have WALKs through November 18th and if you can't find a walk in your area, you can always participate through our Virtual WALK program!
Learn more about our WALK program
See a list of upcoming WALKS
Be a Virtual Walker
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Hydrocephalus Facts Shared Across the Virtual World
Many of you posted our Facebook Banners for Hydrocephalus Awareness Month on your Facebook profiles, thereby raising awareness of hydrocephalus across the virtual biosphere. But it was the FACTS and QUOTES that got our Facebook page humming. Thank you to everyone that participated in the lively conversations around our posts. We will continue to post facts and quotes throughout the year.
If you have a quote you'd like to share, email them to us through Facebook or at info@hydroassoc.org. And don't forget, when you like or share an image on Facebook, Facebook posts it throughout its network and raises the profile of our cause even more!
Visit our Facebook Page
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Mark Paulissen and Mary Sodano take their spirit of adventure and love for bicycling and turn it into the journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged themselves to ride 2,500 miles across the country to raise awareness about hydrocephalus and to help raise funds for the Hydrocephalus Association (HA).
Visit their blog
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Hydrocephalus in the News - Raising Awareness
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Chattanooga, TN WALK Featured in Local timesfreepress.com
The timesfreepress.com, a local news outlet features the story of Chara McLaughlin and Emma, her three year old daughter living with hydrocephalus and how they hope to make a differenc in the upcoming Chatanooga, TN WALK on October 27th.
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Rhode Island Representatives David Cicilline and James Langevin join the Pediatric and Adult Hydrocephalus Caucus.
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