The content in this preview is based on the last saved version of your email - any changes made to your email that have not been saved will not be shown in this preview.


June 2014  
In This Issue
The CEO's Corner
Conference Update
Support and Education Update
Advocacy and Awareness Update
In the News

 

Our Mission:

 

Eliminate the challenges 

of hydrocephalus. 

 

   


Upcoming Events

HYDRO QUEEN

I have a secret to tell you 

I have found the Eighth Sea
It's within me
Yes, I am the Hydro Queen.

 

Sailing on my ship
Crashing over waves
Steering with precision through whatever comes my way
Leading my crew to your shores

 

The cabin shakes and I warn them of the impending storm-
They look at the blue sky
and laugh

 

Suddenly, the sea swells
Flooding the ship and pulling us down
Sending us in a spiral as the ocean swallows us up
Crashing us violently against the sandy floor

 

Slowly I peel my frozen hands off the helm
No use in steering now
I may look like a Queen, but I'm not so sure I like this crown anymore
It's grown heavy over the years.

 

A door flies open and hundreds of yellow butterflies emerge
Releasing with them all that was stowed away
The ship creaks and we begin to float upward
Breaking through the sea we sway twice and balance perfectly on the surface

 

I taste air for the first time and a tear steals away
Mixing with sea water down my cheeks

 

I surrender to the deck with my face towards the sun
I have never felt more royal

 

I let them take the wheel for now
I've got nothing to prove
They'll be amazed what I can do on dry land

 

Our map may have washed away but I know the trip by heart
I will never stop sailing to you.

 

 By Karly Rodriguez Copyright © 2014

 
Join our mailing list! 
If our newsletter has been forwarded to you and you would like to receive it in the future, click below

___

Like us!


Tweet us!


Watch us!


Link us!


Pin us!

The CEO's Corner

 

In her monthly blog, HA CEO Dawn Mancuso shares insights into our recent Hydrocephalus Research Workshop held in St. Louis, MO, in late April. Read More 

 
Nobody should face hydrocephalus alone. That's why HA launched the Every Member Campaign to galvanize the community and raise critical funds to provide on-going support and awareness. Please take a moment to send your membership gift today! Every member gift counts in helping HA to fulfill its mission. Send My Gift 
13th National Conference on Hydrocephalus
The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!
 
Early Bird registration EXTENDED to June 16th!
 
Adam Page, U.S. National Sled Hockey Team two-time paralympic gold medalist, will inspire conference participants in Portland, OR, July 9-11, 2014.
 Read more

  

Dr. Stephen A. Back will deliver the Scientific Keynote on the development of strategies to promote regeneration and repair of injury to the brain. Read more 
Dr. Vogel will present his current research study which may put us one step closer to understanding a root cause of hydrocephalus by examining the role cilia play in the functions of the brain and the role NPCs play in hydrocephalus. Read more 
Our conference features interactive and informational tracks for the different segments of our community. Take a peek at some of our highlights from each track and download a copy of our current agenda, which also includes a description of our All-Age sessions and Plenary sessions. Read more
 
From our BLOG:
Parent Track Highlights blog coming soon!
 
Conference: Celebrating Our Community
Conference: Celebrating Our Community
Support and Education Update

Cathy Cartwright wins this year's Mary Decker Mentorship Award for her tremendous passion, caregiving, and nurturing of children with hydrocephalus. 

Read More

    

 
  
In this installment of our video blog series, Debby addresses the question of how to make the transition from a pediatric neurosurgeon to an adult medical team, which typically includes both neurology and neurosurgery. You can see earlier episodes on our YouTube channel at http://bit.ly/PSGBjR 
 
Through A Mother's Eyes: Transitioning from Pediatric to Adult Hydrocephalus Care
Through A Mother's Eyes:
Transitioning from Pediatric Care to Adult Care
 
  
The Hydrocephalus Association is so pleased to announce the 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients! Read more

You Can Always SMILE! 
 

Shop at AMAZON throughout the year? Go to smile.amazon.com instead of amazon.com and Amazon will donate to HA every time you shop! Same site, same products, same service, different web address! It's not just for the holidays! Start shopping!

Advocacy and Awareness Update
 We're Looking for Advocates!

 

Do you have experience working with in the offices of an elected official, at either a national or state level? Have you ever been engaged professionally in the field of advocacy? Learn more about our Advocacy Committee. advocacy@hydroassoc.org. 

  

Advocacy Committee Application

The WALK Chairs are busy planning WALKS around the country. Will you be attending a WALK this year? Find the WALK nearest you! 2014 WALK Schedule 
In the News

Australian Government Denies Hydrocephalus Registry

 

The Australian government chose not appropriate $200,000 for a national registry of shunt operations in the Australia federal budget. 

Increase in ER Visits due to Traumatic Brain Injury 
 
The number of visits to the emergency room between 2006 and 2010 rose for traumatic brain injury. Researchers are unclear why. 
CNN World Shares Photo of Bangladeshi Orphan with Hydrocephalus
 
CNN World The Week in 37 Photos shares the photo of John, a 1 year old orphan in Dhaka, Bangladesh, suffering from severe hydrocephalus. 
PA Boy Wins Elks Child of the Year 
 
Braden Earnhardt, 5, was named the 2014 to 2015 Child of the Year from the PA Elks. He lives with spina bifida and hydrocephalus. 
Local Teen Raises Hydrocephalus Awareness in Honor of Cousin
 
Ivon Montano educated her community about hydrocephalus and held a fundraiser to benefit HA all in the name of her little cousin. 
29% Rise in ER Visits for Head Trauma over 4 Years 
 
A recent JAMA study found a 29.1% increase in the number of patients being treated for traumatic brain injury in emergency rooms. 
New Numbers Show Low Estimates for Active Duty Troops and TBI 
 
Researchers at Johns Hopkins have found under-recording of sustained head trauma in the early parts of the wars in Afghanistan and Iraq. 
NPH-type Symptoms Found after Intraventricular Hemorrhage 
 
Patients with intraventricular hemorrhage after intracerebral hemorrhage have an increased risk for developing two of the three classic NPH symptoms. 
Forward email


This email was sent to amanda@hydroassoc.org by blog@hydroassoc.org |  


Hydrocephalus Association | 4340 East West Highway, Suite 905 | Bethesda | MD | 20814