The HA's Mission is to: 'Eliminate the challenges
of hydrocephalus'
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ODE TO A PEDIATRIC NEUROSURGEON
Never sleeping, Family...Who? Cries of children Parents, too- Breaking hearts Brilliant smiles Holding hands, Sitting just awhile. Eyes that tear Hearts that ache Wish you could fix All who come to you this day. Bone tired, never enough sleep, Hugs from parents And their children, keep You forging on Day by day Praying you are helping In some small way. When in truth, all be told You are a hero Strong and bold To the parents And their children, too. YOU, Pediatric Neurosurgeon Are OUR hero By all that you do.
©2008 Debby Buffa All Rights Reserved
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The CEO's Corner
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As I sit down to write this blog, my mind is full with plans, hopes, and dreams for this New Year. 2013 is the Hydrocephalus Association's 30th Anniversary year, and the staff and board wants to spend some time in the next 12 months commemorating the rich legacy built by all of our volunteers, celebrating the robust community we have come together to foster, and recommitting our resources to end the challenges of hydrocephalus.
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Support and Education Update
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Hydrocephalus is a chronic condition affecting people of all ages. As we deal with the challenges of hydrocephalus, our caregivers are there to guide us and help us through those challenges. They are our parents, siblings, friends, doctors, nurses...who give us unconditional support.
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Development Update
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Join the Professional Member Society
The Hydrocephalus Association invites members of the medical and research community to join the Professional Member Society today. As a member, you will demonstrate your commitment to HA's mission and the thousands of families that we serve. To join, simply click the below link or call 301-202-3811 and we will complete your membership over the phone.
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Our Season of Giving Campaign
As the year drew to a close, members from our community shared stories of both giving to and receiving from the Hydrocephalus Association. We would like to thank everyone who participated in our Season of Giving campaign, making it possible for us to continue providing education and support to individuals as well as to fund critical research initiatives. Read our inspirational stories from our community.
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My name is Tracy, and I was born with hydrocephalus . My condition went undetected for 23 years, until one morning I woke up and drove to work and was not able to get out of my car. Read more...
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My name is Megan, and I'm the big sister of Brady. My brother was diagnosed with hydrocephalus at birth, and I want to help find a cure. Read more...
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I was diagnosed with Normal Pressure Hydrocephalus(NPH)after over 15 years of experiencing a slow progression of seemingly inexplicable mental and physical decline. Read more...
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I'm writing in memory of my daughter Ellen who passed away on July 17, 2006. She was my youngest daughter and had two brain surgeries, first an ETV followed by a shunt placement.Read more...
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Research Update
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The Hydrocephalus Association would like to congratulate Dr. Michael A. Williams on being named president of the International Society for Hydrocephalus and Cerebrospinal Fluid Disorders( ISHCSF). The announcement was made at the association's conference in Kyoto, Japan which took place October 19 - 22, 2012.
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Advocacy and Awareness Update |
by Randi Corey
When I was a child one of my favorite parts of Thanksgiving Day was watching the Macy's Thanksgiving Day parade from New York City on television. One of the tidbits of information they imparted that impressed me, even at that young age, was that the day after the parade they would start working on next year's parade.
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Stepping Out of Your Comfort Zone
by: Mindy Weinstein
Be Brave and Share Your Story! You Never Know Who Will Step In and Support You. At the age of fourteen, I didn't want to be viewed differently. I didn't want to be labeled as "the girl who had brain surgery and almost died." Years later, I have tried to change this way of thinking.
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The Other Side of the HA WALK
...Or, There's More Than One Reason to Participate! by Randi Corey
It's not unusual for families to travel to participate in a HA WALK. Most of the families participating come from within a 100-mile radius (or two hour drive) of the WALK site. But we've had families travel much farther - in Florida we had a family drive for 7-hours to attend the South Florida WALK.
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Hydrocephalus in the News - Raising Awareness
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