Hydrocephalus Association eNewsletter | MAY 2020

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FEATURED ARTICLES

Thank You for Supporting our Resilience Fund

Thank you to all all that participated in Giving Tuesday NOW! Thanks to you, we are nearing 85% to our Resilience Fund goal of $150,000. There is still time to give for those who have not contributed

Registration is now open for our FREE online National Conference on Hydrocephalus! Register now and join us from the comfort of your own home June 26-27, 2020. Our conference features over 25 sessions with world-renowned medical experts and researchers, with opportunities built in to connect with your peers virtually!

UPCOMING EVENTS

5/15

6 PM CDT - Adult Virtual Meet-Up (AL, MS) Info in local CN Facebook Group

5/16

In Your 20's? Living with Hydrocephalus? Join us!

5/16

3 PM EDT - Adult Virtual Meet-Up (DC, MD, CA, PA, DE) Info in local CN Facebook Group

5/16

4 PM EDT - Adult Virtual Meet-Up with Dr. Patel (NC, SC, TN, GA) Info in local CN Facebook Group

5/16

7 PM MDT - Adult Virtual Trivia Night (UT, NV, CA, ID, WA, OR) Info in local CN Facebook Group

6/1

Supporting Individuals Living with Spina Bifida and Hydrocephalus (Nigeria)

6/20

Supporting Individuals Living with Spina Bifida and Hydrocephalus (Nigeria)

6/26

HA CONNECT Virtual - 16th National Conference on Hydrocephalus)

Virtual Meet Ups are being hosted in our local Community Networks. Click here to join your local group

OTHER STORIES

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Locust Cider Now Ships Nationwide!

Our friends at Locust Cider are now shipping their delicious cider nationwide! Order some for yourself or surprise friends across the country! The company donates a portion of their proceeds, and $25 from each new club membership, to the Hydrocephalus Association!

Join our Hydrocephalus Patient Registry

Over 500 individuals have joined HAPPIER, the nation's first Hydrocephalus Patient-Powered Registry. HAPPIER is for patients and caregivers to provide input about how hydrocephalus impacts their life. Information collected will help paint a clearer picture of the condition and inform critical research. Join today!

Read Lola's Story of Hope and Strength

"Today I’m happy that the good days still outnumber the bad days. My hope is that in sharing a snippet of my journey with hydrocephalus, you are able to focus on the good days and not the bad days of your journey with this condition," says Lola. Read her story!

New Update About COVID-19 and Neurological Symptoms

You may have seen news reports regarding neurological symptoms of COVID-19. Our Medical Advisory Board addresses this issue in a new update to our COVID-19 Guidance for People Living with Hydrocpehlaus.

Aesculap Launches New Hydrocephalus Valve

Our friends at Aesculap Inc., in partnership with MIETHKE, announced the launch of a new valve for hydrocephalus patients called the M.blue valve. The M.blue valve consists of an adjustable gravitational unit and a fixed differential pressure unit, which counteracts the risk of possible overdrainage complications, especially in the upright and active body position.

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Our mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

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