Hydrocephalus Association eNewsletter | March 2020

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FEATURED ARTICLES

Hydrocephalus Association Statement on Coronavirus

We are closely monitoring the current situation with the novel coronavirus (COVID-19) and are in close contact with our Medical Advisory Board. Read our statement and recommendations.

Join us in Houston for HA CONNECT 2020

Have you registered yet for HA CONNECT, our National Conference on Hydrocephalus? HA CONNECT will be held June 25-27 in Houston, TX. Don't miss your chance to hear from experts on issues that address the medical, educational and social complexities of living with hydrocephalus. Register by April 1st for the early-bird rate!

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.

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UPCOMING EVENTS

4/18

Supporting Individuals Living with Spina Bifida and Hydrocephalus

5/2

StrikeOUT Hydrocephalus Play Day: Charlotte Knights vs. Pawtucket Red Sox!

6/1

Supporting Individuals Living with Spina Bifida and Hydrocephalus

6/25

HA CONNECT - 16th National Conference on Hydrocephalus

OTHER STORIES

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Lola Encourages Other Hydro Warriors to Stay Positive

Lola Bolaji was diagnosed with hydrocephalus at age 6. Lola has been relentless in her quest to increase awareness about hydrocephalus in the workplace while bringing her diverse background to the forefront to encourage other young adults and teens that they are powerful regardless of their condition. Read her story.

Lawmakers Join Hydrocephalus Caucus

New members are joining the Hydrocephalus Caucus thanks to your efforts. To ask new members to join, click our advocacy toolkit for resources.

Get to know Dr. Brandon Miller: HA 2019 Innovator Award Grantee

In the second installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Brandon A. Miller, one of four scientists who received an Innovator Award grant.

Scout O’Donnell: Using Fashion to Help Others Heal

After being diagnosed with hydrocephalus at 18, Scout O’Donnell found a way to combine her two passions — fashion and finding a cure for hydrocephalus.

New Paper Addresses Challenges of Health Care Transition for Youth with Hydrocephalus

A new paper published in World Neurosurgery explores the challenges faced by youth during the transition process and the steps necessary to ensure young adults with hydrocephalus receive the longitudinal care they need to lead healthy and supported lives.

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