Hydrocephalus Association eNewsletter | JUNE 2020

GET INVOLVED

FEATURED ARTICLES

What Would YOU Do to End Hydrocephalus?

This year we’re expanding our WALK to End Hydrocephalus into a national movement that starts NOW wherever you are! Whether you go for family walks around your neighborhood, host a family hula hoop competition in your backyard or virtual happy hours with friends, turn your passion into a way to raise awareness and funds for a cure! Join our movement NOW!

Don't miss our FREE online National Conference on Hydrocephalus June 26-27. HA CONNECT features over 25 sessions with world-renowned experts, medical professionals and researchers, as well as opportunities to connect with your peers virtually!

UPCOMING EVENTS

6/20

Supporting Individuals Living with Spina Bifida and Hydrocephalus (Nigeria)

6/26

HA CONNECT Virtual - 16th National Conference on Hydrocephalus

7/27

Camp Headstrong:
Virtual Summer Camp for Kids & Teens with Hydrocephalus

Virtual Meet Ups are being hosted in our local Community Networks. Click here to join your local group

OTHER STORIES

view more stories

Individuals Diagnosed with iNPH Show Improved Quality of Life after Shunting

A new study found that shunting improved the quality of life for people living with Idiopathic Normal Pressure Hydrocephalus (NPH). Read our summary!

Is your child living with complex hydrocephalus and/or multiple shunts?

Pre-submit questions for our session on complex hydrocephalus at our National Conference on Hydrocephalus by emailing: conference@hydroassoc.org. Don't forget to register to attend Conference for FREE!

SUBMIT QUESTIONS

SHARE YOUR STORY: Lynn

What happens if you wake up one morning to crippling headaches and learn that you’ve had hydrocephalus your whole life? That’s what happened to Lynn. Her hydrocephalus diagnosis inspired her to live life with purpose and help others however she can. Read her story!

A Conversation with Aesculap About new M. Blue Valve

On May 15th, Aesculap Inc., in partnership with MIETHKE, released a new valve for hydrocephalus patients called the M.blue valve. So we spoke with them to learn more about their new valve and how it differs from other shunts. Read our Q&A!

HA Receives High Marks from Charity Watchdog Groups

Did you know that we were evaluated by several of the leading charity watchdog organizations, like Guidestar, Charity Navigator and the Better Business Bureau (BBB), and awarded high marks for our transparency, public accountability, program efficiency and cost effectiveness? Check out all of our charity ratings!

JOIN US

Our mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

Unsubscribe