Hydrocephalus Association eNewsletter | APRIL 2020

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FEATURED ARTICLES

Resilience Fund

Many of you have emailed to see how you can help HA during this difficult time. Thank you so much for your support and trust in us! To mitigate the impact of COVID-19, we have established the 2020 Resilience Fund. Thanks to our generous Board of Directors, we received a challenge grant to help raise $150,000 by May 15, 2020. For those who can, please consider making a gift to the Resilience Fund today. Your gift will be matched 1:1 and help HA make it through this uncertain time.

HA CONNECT 2020 Goes Virtual!

We're excited to share that HA CONNECT, our National Conference on Hydrocephalus, is going virtual...and it's FREE! This is our gift to YOU for your continued support and trust in us. With COVID-19, we felt it was the right thing to do to keep our community safe. HA CONNECT Virtual will be held June 26-27. Read our full announcement for details!

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.

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UPCOMING EVENTS

4/18

Supporting Individuals Living with Spina Bifida and Hydrocephalus (Nigeria)

5/2

CANCELLED:
StrikeOUT Hydrocephalus Play Day: Charlotte Knights vs. Pawtucket Red Sox!

6/1

Supporting Individuals Living with Spina Bifida and Hydrocephalus (Nigeria)

6/26

HA CONNECT Virtual - 16th National Conference on Hydrocephalus

Virtual Meet Ups are being hosted in our local Community Networks. Click here to join your local group

OTHER STORIES

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New Resources to Help You Stay Resilient

Our hydrocephalus community KNOWS resiliency! To help you stay resilient throughout the COVID-19 crisis, we launched a new series on social media called #WeAreResilient.

A Tribute to Dr. Goodrich

The Hydrocephalus Association and many in the hydrocephalus community were deeply saddened to learn of the passing of Dr. James Goodrich on March 30, 2020. Dr. Goodrich was a pediatric neurosurgeon and longtime friend and supporter of HA.

Get to know Dr. Joel Geerling: HA 2019 Innovator Award Grantee

In the 3rd installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Joel Geerling, one of four scientists who received our 2019 Innovator Award, and Maggie Tish, who works in Dr. Geerling’s lab. They delve deeper into their fascinating research on Normal Pressure Hydrocephalus (NPH).

Are you living, or caring for someone with Normal Pressure Hydrocephalus (NPH)?

There's a Facebook group just for you! Meet others impacted by NPH and participate in virtual meetups to stay connected

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Resources on Coronavirus and Hydrocephalus

Find the answers and resources you need on COVID-19 (Coronavirus) and Hydrocephalus. You'll find links to our Q&A recordings, the statement from our Medical Advisory Board, and more.

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Our mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

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