PATHWAYS, Hydrocephalus Association eNewsletter | April 2017
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FEATURED ARTICLES CLICK HERE FOR ADDITIONAL ARTICLES
Tackling Obstacles to Finding Care for Young Adults with Hydrocephalus

Olympic Gymnast raises
Hydrocephalus Awareness
 

FREE WEBINAR - Advocacy for
Teenagers and Young Adults

Where will you WALK TO END 
HYDROCEPHALUS this year?

UPCOMING EVENTS

04/22
Chicago Community Network Special Research Update Event

04/22
Virginia Community Network HA Research Update Event

04/22
Eastern PA Community Network HA Research Update Special Event

04/22
Hydrocephalus Mommy Meet Up - Baltimore Area

04/29
FREE Education Day at John Hopkins All Children's Hospital - St. Petersburg, FL

04/29
Financial Planning for Your Child's Future

05/11
Hydrocephalus Awareness Night at the BALL PARK

05/16
FREE WEBINAR - Advocacy for Teenagers and Young Adults

05/26
Hydrocephalus Mommy Meet Up - DC Metro Area

06/03
FREE Education Day at NYU Langone Medical Center - New York, NY

07/29
FREE Education Day at Nicklaus Children's Hospital - Miami, FL

We have QUESTIONS.
YOU have answers!

 Young Adult in your 20s?

Have you recently transitioned from pediatric to adult-centered medical care? We would love to hear your experiences, accomplishments and challenges. Parents with stories also welcome to share! Please email jennifer@hydroassoc.org.

 

 What policies are important
to you?

As a new direction in healthcare, education, and labor are being developed, we want to know what issues are important to you and our larger hydrocephalus community. What needs to stay? What needs to change? How are you now or how will you be potentially positively impacted or challenged? Email us at advocacy@hydroassoc.org to share your experience and opinion. It is important to us!

 
OTHER STORIES
Over 500 Adult Hydrocephalus Patients Enrolled in Registry
My Transition from Pediatric Care to Adult Care
Sleep Away Camp for Kids with Hydrocephalus
CSF Shunt Entry Site Trial
Ever Wanted to Push Yourself to Run?
How Hydrocephalus has Impacted My Life: One Teen's Story
New to Hydrocephalus? These Can Help
VIDEO! Hydrocephalus and Disability Benefits
Our Top 2016 WALK to End Hydrocephalus Teams!
Study into Congenital Hydrocephalus Needs Participants - ALL AGES!
VIDEO! Session 2 - Overview and Diagnosis
Advocates Take to Capitol Hill for Rare Disease Week
VIDEO! Pregnancy and Hydrocephalus
Patients Needed for Study on Hydrocephalus' Impact on the Brain - ALL AGES
VIDEO! Hydrocephalus: The Birds and the Bees
Sign Up for Our Advocacy Newsletter!
Is HA Your AmazonSmile Charity? Here's How to Add HA!
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Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition.

Copyright 2017 Hydrocephalus Association, All rights reserved.

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Hydrocephalus Association, 4340 East West Highway, Suite 905, Bethesda, MD 20814-4447
toll-free (888) 598-3789 http://www.hydroassoc.org