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The Hydrocephalus Scoop on Capital Hill for June/July 2023

July 17, 2023

Right now, Congress has two important tasks as it works to increase the country’s debt limit and also come to agreement on how much money will be spent in next year’s federal budget. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capital Hill for May 2023

June 1, 2023

Right now, Congress has two important tasks as it works to increase the country’s debt limit and also come to agreement on how much money will be spent in next year’s federal budget. Here’s the scoop on what’s happening on hydrocephalus issues.

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Girl talking to doctor about a shunt system

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December 1, 2022

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Girl talking to doctor about a shunt system

Graphic Design Request Form

December 1, 2022

Graphics and photos are important on social media. They make your social media posts more attractive and interesting, and increase the chances that your followers will like and share your post.

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Girl talking to doctor about a shunt system

Giving Tuesday 2022 | Social Media Toolkit

November 14, 2022

Graphics and photos are important on social media. They make your social media posts more attractive and interesting, and increase the chances that your followers will like and share your post.

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Community Rallies Together in Saying “No More Brain Surgery”

October 6, 2022

Patients, family members and local businesses will raise awareness and critical funds for a brain condition that has no cure and that affects more than 1 million Americans.

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The South Carolina Community Rallies for Hydrocephalus

September 10, 2022

Olly Otter and hundreds of families and medical professionals will rally to raise awareness and critical funds for hydrocephalus, an incurable, life-long neurological condition that affects over 1 million Americans. The walk is followed by a full day of family-oriented events.

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Welcome to HA’s Three New Board Members

July 28, 2022

The Hydrocephalus Association warmly welcomes our three new board members. Meet our entire board of directors…

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Hydrocephalus Awareness Month | #HAM2022 Social Media Toolkit

August 16, 2021

Graphics and photos are important on social media. They make your social media posts more attractive and interesting, and increase the chances that your followers will like and share your post.

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Non-Discrimination Policy

June 21, 2021

It is the policy of the Hydrocephalus Association that all grants and services provided by…

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Financial Disclosures

January 25, 2021

The Hydrocephalus Association discloses the financial support it receives from all sponsors. The following disclosure…

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20 Powerful Facts About Hydrocephalus

June 5, 2020

Use our hydrocephalus facts and stats to educate your friends, family, and social followers. Together,…

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Annual Membership Campaign

November 15, 2017

Roadmap to a Cure is our commitment to invest $20 million by 2020 to accelerate hydrocephalus research, expand patient support services and raise public awareness about hydrocephalus.

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Stand and Deliver

June 18, 2013

Afraid or embarrassed to let others know you have hydrocephalus? Madeleine Darowiche shares her experience of telling her high school classmates about living with hydrocephalus.

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A Mother’s Love

December 13, 2012

A Mother’s Love, Andrea By Alexandrea, diagnosed at 6 weeks (who is non-verbal) written by…

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A Mom and Aunt

December 13, 2012

The Magic of a Mom and an Aunt Stacey, diagnosed at 25 years old It…

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