In the News

Australia Continues to Push for Registry

An Australian family has welcomed the aid of Senator Bob Day in pushing for a national shunt registry. One of Day’s staff members lost a child to the complications of hydrocephalus.

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Central Florida Opens Cafe to Aid those with Brain Injuries

The Knights on the Go Cafe was unveiled at a ribbon-cutting ceremony on Monday. It features a harness system for helping people with limited mobility.

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Young Man Recalls the Story of his Lifesaving Surgery

A young man reminisces about his surgery from ten years ago. He had had a tumor that brought upon hydrocephalus.

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Young Woman Prepares for 121st Surgery

A Minnesota 20-year-old will undergo here 121st surgery to replace an infected shunt.

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HA-Nominated Advocate Joins Department of Defense Medical Research Peer Review Board

Barrett O’Connor, a Hydrocephalus Association-nominated patient advocate, is serving on the latest panel reviewing applications for medical research at the DoD.

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How Roald Dahl Revolutionized Shunt Design

When his son got hydrocephalus, the famous Charlie and the Chocolate Factory author decided to design a new and better shunt for him.

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New Treatment Procedure Could Help Eliminate Infant Deaths from Hydrocephalus

A Loyola University Medical Center neurosurgeon has challenged neurosurgeons worldwide to stop infant deaths from hydrocephalus. Dr. Prabhu believes a new procedure could help those in developing countries treat the condition.

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How Mobile Health Apps are Making a Difference

The mobile health industry, along with remote monitoring and telehealth systems, has a wide impact on reducing hospitalizations and emergency room visits throughout the healthcare spectrum by improving communication and care coordination among specialists, doctors, nurses, and others.

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Local High School Drum Line to Lead Hydrocephalus WALKERS

Members of the Cinco Ranch High School band have volunteered to kick-off the Houston Hydrocephalus Association WALK which takes place on Saturday, October 17, at Fellowship Church, Houston.

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Pope Kisses Young Boy with Hydrocephalus

ABC 13 Eyewitness News in Philadelphia reports on the Pope’s Philadelphia visit where Matthew Campuzano, a young boy born with hydrocephalus, received a special greeting.

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WNYH Announces Western New York WALK

Western New York had an amazing WALK on Saturday, September 19th. WNYH helped promote the WALK during a news segment. Adam Page served as the honorary chair.

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New Research Initiative to be Launched at HA’s Vision Dinner

The annual Vision Dinner held in New York City will unveil the new Hydrocephalus Association Network for Discovery Science (HANDS).

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Identifying Best Candidates For Spina Bifida In-Utero Surgery

A new study found that fetuses with enlarged brain ventricles are more likely to get a second surgery after birth.

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Spirit Fest Going for Guinness World Record with Hydrocephalus

The Chicago Tribune reports on Stevenson High School’s annual back-to-school fundraiser, which will benefit the Hydrocephalus Association as well as go for a Guinness World Record while raising hydrocephalus awareness.

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A True Champion

Cohyn Wells, who is nine years old and lives with spina bifida, hydrocephalus and Chiari malformation, has been named Champion Child for the Children’s Hospital Foundation.

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UNCP Hopes to Push TBI Research Forward With Help of Recent Grants

University of North Carolina has been awarded a grant to fund a study for neurotoxin action. Lead Scientist Dr. Bahr hopes the recent grants will push forward traumatic brain injury program and Alzheimer’s research.

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Seven States Join Congress in Declaring September Hydrocephalus Awareness Month

Local volunteers joined forces with elected state representatives in Connecticut, New York, Tennessee, Virginia, South Carolina, Colorado and Illinois to proclaim September as Hydrocephalus Awareness Month.

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Concussions: A Serious Problem for Students

Kathryn Theisen explains the importance of teachers, counselors, medical professionals and students working to support students suffering from concussions.

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New NIH NINDS Director Announced

Walter J. Koroshetz, MD, was named the Director of the NIH National Institute of Neurological Disorders and Strokes (NINDS).

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Local 5K Benefits Boy with Hydrocephalus

The We Care 5K in CT will benefit the family of Jared Carreras, the son of the rapper whose video went viral on social media.

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Washington Wizards Grant Teen with Hydrocephalus His Wish

The Washington Wizard with Kids Wish Network granted a Maryland teen, Elijah Taylor, born with hydrocephalus and spina bifida, his dream to attend a game.

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Registry for North Dakotans who have Suffered Brain Injury Approved

Representative Dick Anderson (R) has introduced a North Dakota House bill that would create a registry for those who have suffered a traumatic brain injury.

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$21 Million Increase for Brain-related Research Projects by Government

The Hill details the $21 million increase in the recent spending measure for brain-related projects at the NSF, including the BRAIN Initiative.

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Nanoscale Devices Used for Enhanced Detection of TBIs

MRIs can detect TBIs, but not at the molecular and cellular levels. Sarah Stabenfeldt aims to change that.

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Wounded Warriors Helped by New Technology

Devices may be able to detect gaps in the neurological connections in the brain caused by a traumatic brain injury.

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The Impact of Brain Injury on Memory

Researchers from the Kessler Foundation have published a study looking at the impact of traumatic brain injury (TBI) on long-term memory.

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Austin’s Season for Caring includes a Special Hydrocephalus Family

The Reyes family shares a heartwarming series of family photos with The Austin-Statesman, highlighting them as one of this year’s recipient’s of the Statesman’s Season fro Caring program.

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Bill Signed into Law Assists those with Traumatic Brain Injury

President Obama signed legislation that reauthorizes a 1996 law that provides assistance to those suffering with TBI and that funds research into brain injury.

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Florida Boy Anchors State Championship Bowling Team

Petey Vergos, diagnosed with hydrocephalus at 6, is the two time Bowler of the Year title holder and a two time State Champion with his team.

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Adam’s Hydrocephalus Story

Adam Bulakites of Kansas City, Missouri was diagnosed with a brain tumor that caused hydrocephalus. This is his story.

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Women’s & Children’s Hospital Welcomes Dr. Ann Marie Flannery

Dr. Flannery, a member of the HA Medical Advisory Board, has joined a pediatric surgery team at Women’s and Children’s Hospital.

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UT Researchers Receive $17 million for TBI Research

Researchers have been granted $17 million to advance TBI research. A TBI can be complicated. Everyone from football players to war veterans can be impacted.

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Dr. Manuel Cacdac, retired neurosurgeon from Terre Haute Regional Hospital, dies

Dr. Manuel Cacdac, 74, dies. Cacdac founded the Hydrocephalus Foundation of the Philippines, which helps children born with hydrocephalus.

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Guidelines for the Treatment of Pediatric Hydrocephalus

The Journal of Neurosurgery published an evaluation of current treatments for pediatric hydrocephalus and guidelines for continued treatment.

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An Increase in Public Awareness Increases TBI Research

More attention is being given to TBI as increased focus on athletes takes center stage in the news.

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Study States Concussions Lead to Increased Risk of Dementia in Adults

A new study has found that there is an increased risk of dementia in adults 55 years old and over.

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TBI associated with higher risk of dementia in adults 55 and older

Traumatic brain injuries appear to be positively correlated with a higher risk of dementia in older adults, a new study says.

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University of Hartford Lacrosse Team Welcomes New Squad Member

Team IMPACT and the University of Hartford Men’s Lacrosse Team welcomes it’s newest squad member, Ian Woodward, 14, who has hydrocephalus.

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4th Annual Hydrocephalus Walk takes place in Chattanooga, TN

Nearly 400 people attended the walk this year in Chattanooga, raising money for hydrocephalus.

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Picture-perfect Day for Chattanooga Hydrocephalus WALK

Chattanooga’s LaTrice Currie, Anchor/Reporter for WRCB TV and Chattanooga Hydrocephalus Association WALK Celebrity Chair, reports on the picture-perfect day enjoyed by nearly 400 WALK participants at this year’s event. Click here to read the full article.

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