A hydrocephalus patient of Doernbecher Children’s Hospital designs a hydrocephalus shoe in the annual Doernbecher Freestyle event with Nike.
Because of you and our generous donors that provided matching funds we were able to exceed our goal!
As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.
We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
We have the chance to raise $80K in one day to support hydrocephalus research as well as programs and resources to support individuals and their families. #GivingTuesday is BIG this year!
Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.
Olivia Maccoux shares her story and leads this year’s holiday drive to support the critical research work of the Hydrocephalus Association.
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Fiona Wilcox, chair of the TTC Advisory Council, speaks at The College Board forum on attending college with a chronic medical condition.
Support 21st Century Cures Act (Cures), a bill that could change the lives of many patients by providing funding for medical research. Urge Congress to pass the Cures Act before the end of this year!
Learn about how Dr. Hannah Tully is uncovering risk and protective factors associated with the development of PHH, and the results of a large retrospective study she recently presented.
The incoming Administration and Congressional Members will take office with new policy priorities. On healthcare, some will remain the same, while others will change.
It is important to know before you vote what each candidate’s position is on healthcare and how it will impact you and your family managing hydrocephalus.
With the addition of our inaugural New York City Hydrocephalus WALK, the Hydrocephalus Association now hosts WALKS in all major cities in the United States.
Complementing our National Conference on Hydrocephalus, we are proud to host Hydrocephalus Education Days in select cities across the USA.
Enter the 8th annual Rare Artist contest and be eligible to win a trip to Washington, DC, to see your artwork displayed on Capitol Hill.
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!
Thursday is a National Day of Action across the country as advocates converge on Capitol Hill at the Rally for Medical Research.
Our Charlotte Hydrocephalus WALK Chair shares her daughter’s journey with hydrocephalus.
Featured in Forbes, Team Hydro, now in it’s ninth year, has raised $546,335 for hydrocephalus research.
Dr. Jenna Koschnitzky, Hydrocephalus Association Director of Research Programs, speaks at the 2016 NIH NINDS Nonprofit Forum.
Members of the Virginia Hydrocephalus Association Community Network meet Governor Terry McAuliffe and share their personal hydrocephalus stories.
Sixteen states join the U.S. Congress in declaring September as Hydrocephalus Awareness Month.
The Hydrocephalus Clinical Research Network celebrates 10 years of pursuing impactful research into childhood hydrocephalus.
Consider yourself a Hydrocephalus Advocate medal winner by taking action to support #CuresNOW!
The Mantheiy family is fighting to change truancy law in Pennsylvania for chronically ill children, like their son who has hydrocephalus.
ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.
Support is needed for research initiatives that aim to better understand the distribution and determinants of [hydrocephalus] and to develop new therapies and other interventions.
Have you joined the thousands of advocates around the country speaking out for Hydrocephalus treatments and cures? If not, join the #CuresNOW campaign today!
Motocross Star is spreading awareness about hydrocephalus, one race at a time.
Workshop on Posthemorrhagic Hydrocephalus (PHH) proves the potential for researchers to alter the course of the development of hydrocephalus and its long-term outcomes.
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
Congress is hearing our message and starting to act on measures that will help our #hydrocephalus community, but we need to keep pushing our priorities.
I rarely spoke a word during my first year in college. I was so anxious. It seemed like everything that could go wrong, definitely did…Madeleine continues her blog series.
I hope you take great pride in all that we continue to accomplish with your support.
If we don’t act with a collective sense of urgency, nobody else will. It’s been more than 50 years since a significant improvement has occurred in the treatment of hydrocephalus.