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  • Our Mission:

    To eliminate the challenges of hydrocephalus by stimulating innovative research and providing support, education and advocacy for individuals, families and professionals dealing with hydrocephalus.

  • From The Blog

    Pittsburgh and St. Louis children’s hospitals join HCRN

    by Paul Gross

    Our partners at HCRN have just made a big announcement — that they are adding two new pediatric centers to their network.

    The network now includes Toronto’s SickKids, Pittsburgh’s Children’s Hospital of Pittsburgh, Birmingham’s Children’s Hospital of Alabama, Houston’s Texas Children’s Hospital, St. Louis is Children’s Hospital, Utah’s primary Children’s Hospital and Seattle’s Children’s Hospital. There is now an HCRN center in every time zone.

    This virtually guarantees the quality of care for kids suffering from hydrocephalus will improve across the country. (more…)

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    Hydrocephalus Walk Tip of the Month

    Letter writing campaigns for Walk Family Teams!

    by Randi Corey, Hydrocephalus Association Director of Special Events

    Family Teams currently comprise the majority of the Hydrocephalus Association (HA) Walks. A ‘Family Team’, is usually a team with a direct connection to hydrocephalus and HA’s mission which is to eliminate the challenges of hydrocephalus. The team forms around a family member with hydrocephalus, a mother, father, son, daughter, aunt, uncle, or grandparent. Family Teams vary in size, ranging from one walker to as many as one thousand.

    (more…)

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    Hydrocephalus Association Walk Chairs are Extraordinary

    by Randi Corey

    We’re approaching the fall of 2010 (where did the summer go?) – when the majority of HA WALKs are held.  Between September 1st and November 7th 16 of HA’s 24 annual WALKs are scheduled!  This is my first “walk season” with HA and I’m really looking forward to attending some Walks and hearing about the others.  (more…)

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    An Evening on the Cape

    by David Moore

    On a Saturday evening in Cape Cod, there are a myriad of activities one can do to entertain themselves. So why would anyone want to spend that evening learning about Hydrocephalus? Yet, that is exactly what 35 people did on the evening of July 31— joining Barrett O’Connor and her husband Paul Rogers for a lovely evening of cocktails and hors d’ oeuvres to raise awareness of, and raise funds for, hydrocephalus research.

    (more…)

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