Announcing the 2011 Hydrocephalus Association Scholarship Awardees

We are so pleased and humbled to announce the 2011 Hydrocephalus Association Scholarship Awards recipients. The scholarships program marks its 17th year and we are very proud to honor these amazing young adults. Despite the challenges and obstacles, these future young leaders of our community are able to further their education, help their community and inspire their peers. Read more

Hydrocephalus Clinical Research Network – Making Waves

The Hydrocephalus Clinical Research Network (HCRN) study on Shunt Protocols, headed by Dr. John Kestle, is making waves in the neurosurgical community.  Published in the Journal of Neurosurgery this month, it is an important paper that has already been made available to the public.  Read more

WHAS in Louisville, KY Highlights Hydrocephalus and Upcoming WALK

Jennifer Bruce of Louisville, KY and her daughter Hannah make an appearance on WHAS-11 to promote hydrocephalus awareness and the upcoming WALK.

To see the video:

There are a Million Hydrocephalus Stories; This is the Story of Hannah

by HA Member Susan Andersen Moore

Our daughter Hannah has a programmable VP shunt for her hydrocephalus. Here is a little of her story.

Hannah was born sometime in May of 2002. She was abandoned at 4 months of age on the footsteps of the Social Welfare Institute in Luohe City China. She was terribly emaciated, underweight, and sick. She had been born with thoracic myelomeningocele (Spina Bifida), and had not had corrective surgery. She was the first baby left at the institution, since it had been expanded to take care of special needs children in addition to the elderly care center that had been running for years. She had no name, no background, she only had the mattress ticking that she had been swaddled in. The people at the SWI named her “Dang Miao Miao”. Miao Miao means the heart of the tree. Read more

HYDROCEPHALUS WALK TIP OF THE MONTH– July 2011

Hydrocephalus Association Virtual WALK Program

by Randi Corey, HA Director of Special Events

Announcing the Hydrocephalus Association’s (HA) Virtual WALK and virtual walker programs! No HA WALK in your area yet?  But you’d still like to participate (walk, raise money, be eligible for prizes) in a HA WALK?  Join HA’s “Virtual WALK site!”  HA is expanding the number of WALK sites across the U.S. at an incredible pace but there are still many locations without a HA WALK (yet!)  So that everyone who wishes to may participate HA has developed the Virtual WALK program! Read more

Make a Difference in Congress for Hydrocephalus Research – A CALL TO ACTION

We need your help to make sure your Representative in Washington, DC knows how important it is to expand research for hydrocephalus.  The Hydrocephalus Association has identified four key Congressmen who help decide how the federal government funds research into new treatments for diseases such as hydrocephalus. Read more