by Pip Marks, HA Director of Support and Education
Changes in eye vision of any kind are critical to report as they may well be related to shunt failure/malfunction. Consult with your doctor, neurosurgeon or ophthalmologist, immediately if you ever experience any kind of change in your vision: blurriness, gray outs, double vision, etc. Read more
Launching a new WALK!
by Randi Corey, HA Director of Special Events
Although most HA WALKs are scheduled for the fall, in more than 30 cities across the nation HA volunteer Chairs are hard at work, getting their WALKs underway! (All HA WALKs are totally volunteer initiated and coordinated – our volunteer Chairs are HA’s angels!) Chairs are working on securing sponsorship, on recruiting planning and organizing committees and confirming the WALK sites. HA WALKs are growing rapidly – last year HA had 25 WALKs in 22 states which raised more than 40% of HA’s total annual revenue which has allowed us to provide over half a million dollars in direct funding to hydrocephalus research. Read more
The Hydrocephalus Association (HA) is proud to announce the release of a new informational page specifically dedicated to the needs of persons diagnosed with Normal Pressure Hydrocephalus (NPH). The new NPH page gives a broad overview of NPH, highlights the latest edition of our NPH booklet, illustrates and describes the three classic symptoms that define it, and provides access to resources that will prove helpful to people with NPH. Read more
By Jennifer Bechard, Support Group Liaison
Hydrocephalus Association Support Groups are off to a great start this year. Each week, we are receiving calls or e-mails from enthusiastic, driven individuals determined to help others who are dealing with the challenges of hydrocephalus.
Every child, adolescent, adult and family member has a different story but there are two common threads: Awareness and support are critical. In order to eliminate the challenges of hydrocephalus, we must strive to make hydrocephalus a household word; and by connecting with each other in groups, we can share and support one another allowing us to deal with shared concerns. Read more