Concert to Benefit Hydrocephalus Research
By David Moore
If you live in the Washington, D.C. area, take a stroll down memory lane while helping the future of hydrocephalus research, by attending Peter Yarrow’s Concert for Hydrocephalus. This family friendly event will take place on Sunday, October 24, 2010 at the Residence of the Australian Ambassador in Washington, D.C. Read more
You’re Not Alone
By Jennifer Bechard
Imagine how a 10 year old would feel lying in a hospital bed not knowing what is going on or where to turn to for support. With too many questions and not enough answers, a condition such as hydrocephalus can take an emotional and physical toll on any individual, especially a child. I found myself in this place when I was first diagnosed. Unfortunately, it wasn’t until the age of 17 when I realized how many people have hydrocephalus. I felt and still feel uneasy knowing that others believe they are in this fight alone. In actuality, approximately one million Americans have to live with this condition every day. Read more
Hydrocephalus Association CEO on Her First WALK
by Laurene McKillop, PhD
What better kind of day to walk than a bright, late summer day, crispy cool in the morning and warming up as the Walk proceeds? “Crispy cool” lets you know that I wasn’t on the east coast: this was the Detroit Walk, held on August 7th, 2010. Read more
Gabriel’s Life Sticker Campaign
Our partner website Gabriel’sLife.com is launching an ambitious campaign to raise awareness of hydrocephalus. On September 23, ABC will air the season premier of their hospital drama “Grey’s Anatomy.” On the same day, Gabriel’s Life will launch a campaign to get a Gabriel’s Life sticker on the prime time television show. Read more
HA’s Technology Beat
At the Hydrocephalus Association, we’ve made it a special point to streamline our donation process to make it easier to give online. With the added responsibility of raising funds for research, we cannot afford to do any less for our community. We’ve upgraded to a new giving tool for our Walk program, streamlined workplace giving and completely updated our online donation tool. Read more
Dr. Joseph Madsen Blogs on Translational Research
If you want to understand better how basic scientific research produces better clinical outcomes, be sure to read Dr. Madsen’s article, “A Very Narrow Bridge: Translational Research.” Dr. Madsen, a member of the Hydrocephalus Association Medical Advisory Board, directs a lab at the Children’s Hospital of Boston, where he treats children with hydrocephalus. He spoke on this topic at our recent 11th Hydrocephalus Conference in Cleveland, Ohio. Read more
Read about Amber’s Entourage in the Chaska Herald
Amber’s story about dealing with the challenges of hydrocephalus appeared recently in the Chaska Herald.
Click here to read about Amber and her entourage.
The Night Before Walk
by Randi Corey, HA Director of Special Events
‘Twas the night before Walk and all it entails
Walk Chairs all over were pacing and biting their nails.
Although the site was set up with care
they wished – and wondered
“Would the walkers be there?” Read more
The Hydrocephalus Association Provides Commentary to the Food and Drug Administration
On September 13, 2010, the Hydrocephalus Association had the opportunity to provide commentary at an Open Public Hearing sponsored by the Food and Drug Administration (FDA). FDA currently funds a project called the “Ask Study,” which aims to assess, from the perspective of a young person, the effectiveness of various neurological medical devices they use to combat various conditions. Among these devices are shunts. Read more
Walk Day Fever
By Sarah Oxford
5:30 am. It was pitch black. I rubbed my eyes and looked into a U-Haul truck filled with water bottles, tables, banners and everything imaginable that is needed to host a WALK event. Volunteers, organized by task, scurried to prepare for the event. “We LOVE WALK and Phyllis is SO organized!” said Marty, who is responsible for registration. Sarah, a college senior, strapped her walkie-talkie to her hip and said, “It’s nice to meet you, but I have to get started with decorations! I’m so excited!” Read more
